A free one-day patient conference will be held in Boston, MA on Saturday, September 19, 2015. The conference, hosted by the
Aplastic Anemia & MDS International Foundation (AA&MDSIF), is one of
six one-day patient conferences in 2015.
This will be a multi-track conference for AA, MDS, and PNH patients and their families.
The conference will include parallel (simultaneous) sessions on AA, MDS, and PNH, transplants, sessions to help you live with and cope with these diseases, and professionally-facilitated support sessions with your peers.
Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight.
Conference Program
Come hear about the latest information about diagnosis, treatment (including transplants), and medical research from leading experts, including these physicians:
- Dr. Sergio Giralt, Memorial Sloan Kettering Cancer Center
- Dr. Jack Goldberg, Penn Presbyterian Hospital
- Dr. Tim Graubert, Dana Farber Cancer Institute
- Dr. David Margolis, Children's Hospital of Wisconsin
- Dr. Michael Parsons, Cleveland Clinic
- Dr. David Steensma, Dana Farber Cancer Institute
Patients and family members will also be able to
- meet medical experts face-to-face
- hear about the latest treatments and medical research
- learn skills for managing life with a bone marrow failure disease
- have your questions answered
- learn how to be your own advocate for the best care
- get to know other patients and family members like yourselves
- attend professionally-facilitated support sessions
A special lunch program will let conference attendees meet and talk, with an emphasis on ways to stand up for your health.
Diagnosis, Treatment, and Managing the New Normal - Patient and Family Conference
When:
Saturday, September 19, 2015, from 8:30am to 5:00pm
Check-in begins at 7:30am.
Where:
Westin Waltham Boston (Google map)
70 3rd Avenue, Waltham, MA 02451
781-290-5600 (main)
Discounted hotel rates are available through Monday August 17, 2015.
You can make hotel reservations by phoning or by using the Online Hotel Reservation Page.
Hotel parking is $15 per night.
See other hotel information on the AA&MDSIF event page.
Registration:
Use the online Conference Registration Form to register for the conference.
The registration deadline is Wednesday September 16, 2015.
For more information see the AA&MDSIF event page.
If you plan to attend this conference, post in this thread to let other attendees know to look for you!
After the conference, let us know what you thought of the event.
Fri Mar 6, 2015, 12:05 PM
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