Home         Forums  

Go Back   Marrowforums > Treatments > Transplants
Register FAQ Search Today's Posts Mark Forums Read

Transplants Bone marrow and stem cell transplantation

Reply
 
Thread Tools Search this Thread
  #1  
Old Tue Jan 1, 2013, 12:51 AM
dpmeeks dpmeeks is offline
Member
 
Join Date: Dec 2012
Posts: 22
Admitted for transplant

Hi everyone, well I guess my day has arrived, I was admitted well I guess yesterday now, it's 12:44am. I was admitted on 12-31-12. I'm involved In a clinical trial and have been chosen for non myeloblative low dose chemo then BMT planned on the 8th. I can honestly say I'm scared, greatful, and happy all wrapped into one. I'm two hours away from home so ill be away from family most of the time, but, I know God is on my side and have plenty of movies to watch and books to read. They did a spinal tap on me and injected some chemo in my spine, it's sore and they plan to start my chemo tomorrow on the 2nd. Only issue I've had so far I suffer from boils/abscess and of purse I get one on the inside of my leg two days before admission. It opened up a bit and the doc is suppose to lance it today so hopefully it won't be a problem during transplant/chemo. Anyways, god bless and I hope everyone is doing well... Phil
__________________
Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
Reply With Quote
  #2  
Old Tue Jan 1, 2013, 09:39 AM
ssdavi71416 ssdavi71416 is offline
Member
 
Join Date: Mar 2012
Location: Atlanta Georgia
Posts: 105
Phil

Happy new year. Best wishes for your chemo and BMT. I hope everything goes your way. Prayers and all the best for 2013.
__________________
Scott 51 yr SAA 3/2012. PTL 7, ANC 200. ATG finished 4/9/2012. 2/4/2013. TX independent:; PTL 133, ANC 3300, Hgb 13.4.
Reply With Quote
  #3  
Old Tue Jan 1, 2013, 09:56 AM
Sally C Sally C is offline
Member
 
Join Date: Dec 2010
Location: Chesterfield, Va.
Posts: 457
Good morning Phil,
You are so right that God is on your side. He is with you - every step of the way.
I wish you good health and God's Blessing for 2013.
Best wishes,
Sally
Reply With Quote
  #4  
Old Tue Jan 1, 2013, 02:49 PM
Cam Cam is offline
Member
 
Join Date: Oct 2012
Location: Jacksonville, Florida
Posts: 88
You will beat this. Goodluck and keep the Faith...

Cam
__________________
Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
Reply With Quote
  #5  
Old Tue Jan 1, 2013, 06:59 PM
SLB SLB is offline
Member
 
Join Date: Mar 2012
Location: Brisbane, Queensland, Australia
Posts: 130
All the best, Phil. Good luck & stay strong. Hope it all goes smoothly for you. Sharnie
__________________
Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
Reply With Quote
  #6  
Old Tue Jan 1, 2013, 07:00 PM
Neil Cuadra Neil Cuadra is online now
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,499
Good luck, Phil. Please keep us up to date on your progress and let us know when we can help with tips or advice.
Reply With Quote
  #7  
Old Tue Jan 1, 2013, 08:57 PM
Cheryl C Cheryl C is offline
Member
 
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 838
Best wishes for a successful outcome Phil! God bless and strengthen you.
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote
  #8  
Old Thu Jan 3, 2013, 02:31 AM
dpmeeks dpmeeks is offline
Member
 
Join Date: Dec 2012
Posts: 22
Well been here since Monday and had my spinal tap and chemo injected in my spine, had the boil lanced on Tuesday and they started my chemo yesterday. Everything has gone good so far, my potassium was showing borderline so they have me some orally and after eating dinner my stomach started cramping and I had a touch of diarehha and still do. I doubt the chemo worked that fast, the nurse asked what I had for dinner and she said another paitient had upset stomach as well after eating chicken noodle soup on the side like I had. Other than that, going good so far. I walked 1 1/2 mile in the hallway and plan on atleast that daily.
__________________
Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
Reply With Quote
  #9  
Old Thu Jan 3, 2013, 02:59 AM
MDSPerth MDSPerth is offline
Member
 
Join Date: Sep 2012
Location: Perth, Western Australia
Posts: 74
Good luck Phil, look forward to seeing your progress here on Marrowforums. We will all have our fingers and toes crossed for a speedy recovery for you.
Regards, Sandi
__________________
Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process.
Reply With Quote
  #10  
Old Thu Jan 3, 2013, 07:28 AM
dpmeeks dpmeeks is offline
Member
 
Join Date: Dec 2012
Posts: 22
thank you everyone for the kind words, god bless and ill keep everyone posted, ill be getting my second bag of chemo today...
__________________
Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
Reply With Quote
  #11  
Old Sat Jan 5, 2013, 07:00 PM
dpmeeks dpmeeks is offline
Member
 
Join Date: Dec 2012
Posts: 22
Done with my last bag of fludarabine . They started me on thymoglobulin today, takes 6 hrs to drip in and I can say it makes you feel like your getting the flu. All my joints started hurting immediatly, nurse said it cuz of the med I have to take it til Monday and then take another med with it tomorrow so I'm Gonna be a walking pharmacy. I did manage to walk 2 1/2 miles in the hallway, it truly helps. Hope everyone is having a blessed day
__________________
Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
Reply With Quote
  #12  
Old Sat Jan 5, 2013, 10:43 PM
Heather8773 Heather8773 is offline
Member
 
Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Phil I admire your strength and faith!!! God bless and you will be in my prayers!!! Philippians 4:13

I look forward to reading about your sucessful progress!
__________________
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
Reply With Quote
  #13  
Old Sun Jan 6, 2013, 11:56 AM
squirrellypoo squirrellypoo is offline
Member
 
Join Date: Nov 2008
Location: London, UK
Posts: 458
Sounds like you're doing great, Phil! 2.5 miles in a corridor is no joke, keep it up as often as you can.
__________________
36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
Reply With Quote
  #14  
Old Sun Jan 6, 2013, 05:47 PM
dpmeeks dpmeeks is offline
Member
 
Join Date: Dec 2012
Posts: 22
well, lastnight after getting that first bag of thymogobulin, it hit me like a ton of bricks, I started having joint pain, my fever jumped up to 103, shakes, chills, sweats etc. not a fun night at all . Finally today the fever broke and I sweat it all out of me and feel much better, the doc said its mainly side effects of the thymogobulin. Just finished my second bag today and with some premeds its not hitting me as hard.I have one more bag tomorrow and a bag of TAC ? its another immunosupessor drug and then transplant on Tuesday so im about half way of getting thru all this God has been so very good to me and taking care of me and thank you guys for the support.
__________________
Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
Reply With Quote
  #15  
Old Mon Jan 7, 2013, 11:31 AM
Neil Cuadra Neil Cuadra is online now
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,499
Quote:
Originally Posted by dpmeeks View Post
well, lastnight after getting that first bag of thymogobulin, it hit me like a ton of bricks, I started having joint pain, my fever jumped up to 103, shakes, chills, sweats etc. not a fun night at all . Finally today the fever broke and I sweat it all out of me and feel much better, the doc said its mainly side effects of the thymogobulin. Just finished my second bag today and with some premeds its not hitting me as hard.I have one more bag tomorrow and a bag of TAC ? its another immunosupessor drug and then transplant on Tuesday so im about half way of getting thru all this God has been so very good to me and taking care of me and thank you guys for the support.
We so often hear that patients suffered side effects of an initial treatment, then got premeds that made it easier the next time. It makes you wonder why don't they use the premeds the first time. I guess it's because they don't know which side effects will occur for a given patient. You just hate to hear that someone had to endure side effects for which preventative measures are available.

TAC is tacrolimus, an immunosuppressive like cyclosporine.
Reply With Quote
  #16  
Old Mon Jan 7, 2013, 09:34 PM
dpmeeks dpmeeks is offline
Member
 
Join Date: Dec 2012
Posts: 22
Neil thank you for the info
there flying in my stem cells tonight and processing then I guess around noon tomorrow ill be getting my transplant . Im nervous and thankful to be able to get the transplant and im so very thankful to God and my donor.
__________________
Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
Reply With Quote
  #17  
Old Tue Jan 8, 2013, 01:22 AM
MDSPerth MDSPerth is offline
Member
 
Join Date: Sep 2012
Location: Perth, Western Australia
Posts: 74
Thumbs up

Good luck Phil. Hope all goes well with the transplant. It must be a scary time going into the unknown, but also exciting at the prospect of a potential second chance

Since being a member of this site - mid 2012 - it has astounded me how many matches, and the speed with which the health system in USA finds a marrow match for transplant candidates. The whole process here in Australia seems not to be as efficient.

Perhaps we will have to win the lotto and move to the USA as a patient
__________________
Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process.
Reply With Quote
  #18  
Old Tue Jan 8, 2013, 01:41 AM
Chirley Chirley is offline
Member
 
Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi Sandi, when I was looking for a donor I was on the list for 6 months with no match. When it looked like I needed the transplant more urgently they repeated the tissue typing and said they'd start searching the overseas registries. I was a bit shocked to find they hadn't been looking internationally.

Turns out I didn't need it anyway but the whole thing seemed a bit sloppy to me. Then, there's Julie (Victoria) who got a donor match within a month or so......maybe it's just luck.

Regards

Chirley
.
Reply With Quote
  #19  
Old Tue Jan 8, 2013, 02:03 AM
MDSPerth MDSPerth is offline
Member
 
Join Date: Sep 2012
Location: Perth, Western Australia
Posts: 74
Chirley, this has been explained to us by one of the medical team Paul is under. The Australian Government has a 'budget' for each patient. Resources allow that firstly they test family, if no match, they then go to the Australian registry. If no match is found then and only then, do they go to the international register. They don't give the international register too much push unless it is urgent because it requires more resources!

This all seems very strange because Paul's medical team were talking about early 2013 for a transplant for Paul when they were sibbling testing.

He is fortunate in that since he has been on Neupogen and EPO he has been symptom free. But, lurking in the background is the knowledge that he has the dreaded monosomy 7 and trisomy 8. Only 7 of the 20 cells tested in his BMB showed no chromosome abnormalities.

I read on this site somewhere and thought it was a very apt quote - something like this - "We were driving our own bus along on our pathway of life, and then suddenly a dreaded thing called MDS jumped on and took over the steering wheel for us."

In this instance, we are at the mercy of both this incidious disease and the funds available from the Australian Government.
But, we continue to remain positive that a match will be found.

It makes you very humble when you read some of the stories on this website.
__________________
Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process.

Last edited by MDSPerth : Tue Jan 8, 2013 at 03:22 AM.
Reply With Quote
  #20  
Old Tue Jan 8, 2013, 07:59 AM
Sally C Sally C is offline
Member
 
Join Date: Dec 2010
Location: Chesterfield, Va.
Posts: 457
Best of luck Phil!
God Bless,
Sally
Reply With Quote
  #21  
Old Fri Jan 11, 2013, 07:24 PM
dpmeeks dpmeeks is offline
Member
 
Join Date: Dec 2012
Posts: 22
just an update.. things going good so far, I went to bedlast night and i have to say the worst back pain ever started and lasted all night and most of the day. They sent me down for a CAT scan of my kidneys and took another urine sample everything came back normal but the back pain was getting worse. They think its a muscle issue, personally I think its from the lumbar puncture I had when I was admitted. Ive never experienced back pain like that. They ended up putting some morphine in my IV and I guess hopefully itll go away. I truly think the nurse practitioner that did it hit a nerve in my spine. Ive read it may take weeks for it too clear up.
Ive pretty much lost m appetite for anything so ive been nibbling on stuff and drinking the protein drinks. My CBC is still dropping so I guess I wont know if the cells work for another week or so . im already ready to go home
__________________
Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
Reply With Quote
  #22  
Old Fri Jan 11, 2013, 07:47 PM
kwaidz kwaidz is offline
Member
 
Join Date: Oct 2012
Location: Texas
Posts: 17
Quote:
Originally Posted by dpmeeks View Post
just an update.. things going good so far
So glad things are going well...and sorry you are in pain. Thanks for your strength, positive attitude and faith. Prayers and positive thoughts coming your way.
__________________
K, daughter and caregiver of Em - age 64 dx Oct 2012 with RAEB MDS Intermediate risk. BMT on 3/22/13.
Reply With Quote
  #23  
Old Fri Jan 11, 2013, 09:10 PM
Lori Patrick Lori Patrick is offline
Member
 
Join Date: Oct 2010
Location: Indianapolis, Indiana
Posts: 166
Phil, It is to be expected to have some bad days and that is when I would lean in to God to carry me through. You have a great attitude and I would encourage you to try making a gratitide list to focus on during the bad days. I think one day I really had to stretch to focus - but I did it! May blessings come your way.
Lori
__________________
Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor! cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
Reply With Quote
  #24  
Old Sat Jan 12, 2013, 08:25 AM
dpmeeks dpmeeks is offline
Member
 
Join Date: Dec 2012
Posts: 22
Im trying so hard to be thankful, this back pain is unbelievable at times. I know theres people that are having a rougher time than me and i pray for them. I knew this wasn't going to be easy by no means, I guess I just wasn't expecting the back issue, when it hurts I cant do anything except sit still. I know god will take care of it...
__________________
Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
Reply With Quote
  #25  
Old Sun Jan 13, 2013, 07:37 PM
Lori Patrick Lori Patrick is offline
Member
 
Join Date: Oct 2010
Location: Indianapolis, Indiana
Posts: 166
Phil, I also lost 2 teeth with my platelets very low..... they got infected while I was neutropenic. I also developed a pain in my lower back and abdomen. They thought at one point that they might have had to operate on the abdomen but they did not want to with platelets low --- God took care of it! It went away. I think it is the luck of the draw. I will never forget having those teeth pulled. They were not bad prior to the hospital. Hopefully you are doing well now. Take the meds they give you!!
__________________
Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor! cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Another MDS to BMT - New forum member Whizbang Tell Your Story 285 Wed Sep 17, 2014 12:18 PM
Being Admitted 11/12!!! Susan L Transplants 18 Wed Nov 13, 2013 07:55 PM
Admitted for transplant Heather8773 Transplants 15 Sat Oct 19, 2013 05:35 PM
Al admitted to hospital Al's Wife MDS 7 Tue Aug 14, 2012 08:41 PM


All times are GMT -4. The time now is 02:37 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2020 Marrowforums.org