Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > News and Events
Register FAQ Search Today's Posts Mark Forums Read

News and Events News related to bone marrow failure diseases

Reply
 
Thread Tools Search this Thread
  #1  
Old Sun Jan 29, 2012, 02:56 PM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 920
One-day Patient Conference in Los Angeles, CA, April 21, 2012

A free one-day patient conference will be held in Los Angeles, CA on Saturday, April 21, 2012. The conference, hosted by the Aplastic Anemia & MDS International Foundation (AA&MDSIF), is one of seven one-day patient conferences in 2012.

This will be a multi-track conference for AA, MDS, and PNH patients and their families. Those who live in the West should plan to attend this conference or the June conference in Seattle, WA.

The conference will include parallel (simultaneous) sessions on AA, MDS, and PNH, sessions to help you live with and cope with these diseases, and professionally-facilitated support sessions with your peers.

Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight.

Conference Program

Come hear about the latest information about diagnosis, treatment (including transplants), and medical research from leading experts, including:
  • Dr. Ronald Paquette, UCLA
  • Dr. H. Phillip Koeffler, Cedars-Sinai Medical Center
  • Dr. Casey O'Connell, University of Southern California
  • Dr. Bogdan Dumitriu, National Institutes of Health
  • Dr. Michael Pulsipher, University of Utah
  • Dr. Ramon Tiu, Cleveland Clinic
Patients and family members will also be able to
  • meet medical experts face-to-face
  • hear about the latest treatments and medical research
  • learn skills for managing life with a bone marrow failure disease
  • have your questions answered
  • learn how to be your own advocate for the best care
  • get to know other patients and family members like yourselves
  • attend professionally-facilitated support sessions
Special programs included:
  • Standing Up for Your Health (lunchtime program)
  • Celebration of Hope (concluding program)
Living with Aplastic Anemia, MDS or PNH

When:
Saturday, April 21, 2012, from 8:30am to 5:00pm
Check-in begins at 7:30am.
Where:
Westin Los Angeles Airport (Google map)
5400 West Century Boulevard, Los Angeles, CA 90045
310-216-5858 (main), 800-937-8461 (toll-free reservations)

Discounted hotel rates are available if you make reservations by Wednesday, March 28, 2012.
Hotel self-parking is available but is not free.
See other hotel information on the AA&MDSIF event page.
Registration:
Use the online registration form to register for the conference.
The registration deadline is Wednesday, April 11.

For more information see the AA&MDSIF event page.
The annual Los Angeles Hope, Steps & A Cure fundraising walk will be held the following Saturday, April 28, 2012. Plan to attend both events!
Reply With Quote
  #2  
Old Thu Apr 19, 2012, 05:17 PM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 920
The one-day Los Angeles patient conference is this coming Saturday, April 21, 2012.

Marrowforums will be there. Conference attendees are welcome to stop by our table.

We're all looking forward to hearing the latest disease and health information from experts.

For last-minute details see the AA&MDSIF event page.
Reply With Quote
  #3  
Old Mon Apr 23, 2012, 09:09 PM
triumphe64 triumphe64 is offline
Member
 
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
There are four more this year in various cities. Atlanta is next. I was in LA, and I encourage you to attend one near you.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
One-day Patient Conference in Las Vegas, Nevada, April 22, 2017 Marrowforums News and Events 0 Thu Jan 19, 2017 11:51 PM
One-day Patient Conference in Cincinnati, Ohio, April 30, 2016 Marrowforums News and Events 1 Tue Apr 12, 2016 02:19 PM
One-day Patient Conference in Los Angeles, CA, April 5, 2014 Marrowforums News and Events 3 Tue Apr 8, 2014 07:35 PM
One-day Patient Conference in Houston, TX, April 20, 2013 Marrowforums News and Events 9 Sun Feb 3, 2013 03:52 PM
Los Angeles Hope, Steps & A Cure Walk, April 28, 2012 Marrowforums Los Angeles 2 Mon May 7, 2012 03:56 AM


All times are GMT -4. The time now is 12:45 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org