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MDS Myelodysplastic syndromes

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  #1  
Old Tue Dec 11, 2012, 08:14 PM
yaka yaka is offline
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Join Date: Aug 2012
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My Mom Has Passed Away

This morning my dear mom passed away.

I want to thank all on this forum that answered my questions and sent comforting words during my time of stress.

I wish only health for you all.

Thank you,
Yaka
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  #2  
Old Tue Dec 11, 2012, 11:26 PM
MDSPerth MDSPerth is offline
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Yaka, please accept my message of condolence. May she now rest peacefully.
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Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process.
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  #3  
Old Wed Dec 12, 2012, 02:33 AM
Neil Cuadra Neil Cuadra is offline
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I'm very sorry, Yaka. You have my deepest sympathies. I hope it was a quiet passing. I wish we could have done more to help you through the very hard times the last 14 months.
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  #4  
Old Wed Dec 12, 2012, 08:41 AM
Sally C Sally C is offline
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Location: Chesterfield, Va.
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Dear Yaka,
I too am very sorry to hear this. I hope you find peace in knowing you did everything you could do to provide care and comfort for her. At least her suffering is over.
Take good care of yourself.
God Bless,
Sally
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  #5  
Old Wed Dec 12, 2012, 11:30 AM
Birgitta-A Birgitta-A is offline
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MDS

Dear Yaka,
How sad that your mother lost her fight - still she now has reached peace.
Warm regards
Birgitta-A
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  #6  
Old Wed Dec 12, 2012, 11:41 AM
Lbrown Lbrown is offline
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Sorry to hear about your mother Yaka.

Deb
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  #7  
Old Wed Dec 12, 2012, 12:05 PM
hectorzaza hectorzaza is offline
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Hi Yaka,
Not spoken before but am truly sorry to hear about your mum

keep strong

Hectorzaza xx
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  #8  
Old Wed Dec 12, 2012, 12:10 PM
DanL DanL is offline
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Yaka,

I am very sorry to hear of your loss.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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  #9  
Old Wed Dec 12, 2012, 02:38 PM
slip up 2 slip up 2 is offline
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Yaka...so sorry about your Mom....

Kate
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  #10  
Old Wed Dec 12, 2012, 03:20 PM
bebop bebop is offline
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yaka hon I am so so sorry for your loss. You and your family are in my prayers.
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  #11  
Old Wed Dec 12, 2012, 06:18 PM
sandem01 sandem01 is offline
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I'm so deeply sorry, Yaka. You and your mom are in my prayers.
Jill
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Jill, daughter of Joe, age 76; dx mds RAEB-2 in 3/2010; Low wbc and low hgb, platelets normal; Put on Dacogen for 1.5 years, worked great until 3/12; Vidaza treatment next, 5 rounds - no improvement. Passed away from mds 11/13/12 after a long fight
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  #12  
Old Wed Dec 12, 2012, 08:20 PM
Lori Patrick Lori Patrick is offline
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Yaka- I'm sorry about your loss. Nothing replaces a mom. She is at peace. Blessings to you.
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor! cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
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  #13  
Old Wed Dec 12, 2012, 08:37 PM
Al's Wife Al's Wife is offline
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Location: Jackson, Georgia USA
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Yaka,

So sorry for your loss. Please know that we are praying for you and your family during this time.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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  #14  
Old Wed Dec 12, 2012, 11:39 PM
SLB SLB is offline
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So sorry for your loss. Sharnie.
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Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
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  #15  
Old Sat Dec 15, 2012, 12:02 AM
NLJabbari NLJabbari is offline
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Dear Yaka, please accept my condolences. May your dear mother rest in peace and may you and your family find comfort during this difficult time.
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
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  #16  
Old Sat Dec 15, 2012, 05:02 AM
gramous gramous is offline
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yaka,

so sorry for your lost.
béné
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boyfriend with RARS-T dx 11/02//dx : hb 11,5; plt 870000, wh : 6500//Before fasting cure (13/04): hb: 8,9; plt 2200000; white:6000//After fasting cure (14/09): hb 12,5; platelets 400000, wh 3000.//Now (15/08) : hb : 11,plt : 650000, wh 3000// hydrea 1c/day and cardioaspirin, 1c/day,age: 56 y.
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  #17  
Old Sun Dec 16, 2012, 07:46 AM
ececim ececim is offline
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Yaka,

I'm deeply sorry for your lost. I believe that our moms in heaven now. My mom has died 20 days before your mom. Because of this I really feel your pain.

God bless you

Ece
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  #18  
Old Wed Dec 19, 2012, 04:36 AM
maria&lola maria&lola is offline
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I'm sorry Yaka. May fond memories and the love of family and friends hold you up and give you strength. Maria
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  #19  
Old Sat Dec 22, 2012, 08:31 PM
milliken2 milliken2 is offline
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Please accept my condolences

Yaka;
I am so sorry for the loss of your Mother. We have been enroute to Florida, and I have not logged in in a long while. My delay in posting certainly does not minimize my thoughts for you.
Do take care, and don't be afraid to post and let us know how you are doing.

Beth
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Beth - R.N., B.S.N and wife of recently diagnosed husband who has been classified at stage 4 MDS. and I can't help the one I love the most.
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