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  #1  
Old Wed Mar 19, 2014, 10:56 PM
Caregive Caregive is offline
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Join Date: Nov 2013
Location: USA
Posts: 61
Eastern WA/North Idaho folks

Looking to be in contact with others in this area who have MDS. I'll be attending the conference at Fred Hutch in Seattle June 21.
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Old Thu Mar 27, 2014, 10:00 PM
dfantle dfantle is offline
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Location: bellevue, wa
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Hi, I have AA, live just 20 minutes from Fred Hutch & am a patient there. There is a small MDS group in Seattle & I believe the contact for this group is still Janine. Her email address is: jkowack@comcast.net.

Feel free to contact me if you have any questions about Fred Hutch or Seattle Cancer Care Alliance (where the Fred Hutch Dr's see patients).

Best, Dena
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Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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  #3  
Old Fri Mar 28, 2014, 12:44 PM
Caregive Caregive is offline
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Join Date: Nov 2013
Location: USA
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Hi, Dana. We were at SCCA in December for a consult. No news there. So we do treatment here in Spokane. There will be a patient and caregiver conference on June 21 which I read about in the AAMDS.org site. I will be there for that.

The Seattle support group is not functioning right now. I made contact and was told someone else needs to take over. But hello to you. We can be in contact privately. Husband is getting a transfusion today.
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Old Mon Oct 29, 2018, 12:08 AM
Cindy S. Cindy S. is offline
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Join Date: Oct 2018
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Cindy S.

Hi,
I am a health support for my partner. We live in the Sandpoint Idaho area. We are using High density food.We have been to Seattle and checked out Fred
Hutch. His sister is in the process of test matching.
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