Came across an article on the Standwith APP designed for patients or caregivers to request and manage the help they may need during an illness. I know many asked me how they could help and unless I was at my wits end, I very rarely asked. Sometimes I was just uncomfortable asking for it and other times, just too stressed out at the time they asked that I couldn't think of what I needed beyond the next 30 minutes. So this looks like it can facilitate getting some help. And, if you're going on the journey without a dedicated caregiver, this may make your life a bit easier.
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 146K.