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Transfusions and Iron Overload Blood and platelet transfusions, iron testing and treatments

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  #1  
Old Sat Jan 25, 2014, 10:13 AM
vickij vickij is offline
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Location: Connersville, Indiana
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How long until blood type changes to donors ?

I had transplant 7 mo. ago and everything has changed over except blood type. I am O neg. and I think donor is type A. My hmg. keeps dropping to 7 or below and I have to have transfusions about every 2 weeks. Dr doesn't give much info, he just keeps saying that it will change.
I am very thankful for this site where we can get answers from people who have been through all the things we are going through.
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62 yr old female. dx AA 3/12.treated with ATG 4/12.dx MDS 4/13. MUD BMT on June 25th,2013
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  #2  
Old Sat Jan 25, 2014, 11:32 AM
summerdrake summerdrake is offline
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Hi Vicki!

I had my BMT on June 7th and the last time we had checked it I was about 90% donor. My hemo has been stable the whole time though. My doctor said that everyone is different and he's seen it change in as little as 3 months up to as long as 9 or 10 months. Hope your hemo stays up and your blood changes soon!
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Summer, 27; diagnosed with SAA May 2013; BMT June 7, 2013; off meds, no signs of GVHD; doing wonderfully!
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  #3  
Old Sun Jan 26, 2014, 08:34 AM
vickij vickij is offline
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Thanks Summer

I am glad you are doing so good. I am going to try to get more info from my Dr at next visit. If blood type would change, I would feel great.
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62 yr old female. dx AA 3/12.treated with ATG 4/12.dx MDS 4/13. MUD BMT on June 25th,2013
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  #4  
Old Sun Jan 26, 2014, 04:26 PM
Tii Tii is offline
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Bloodtype change

Hi Vicki,

I had my BMT in Dec 2012, was blood transfusion dependent until Aug 2013, until then I still showed my original blood type as O neg, rather than my donor B neg. All of the sudden I no longer needed transfusions and at my one year mark in Dec 2013 we did blood type testing and I am B neg.

Right now your blood tests are mostly showing the borrowed blood, it will show the type O, but eventually once you start making your own, it will change. For me I took for ever, but better late than never!

All the best!

Tii, 37, MDS (BMT sister donor 12/12)
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  #5  
Old Mon Jan 27, 2014, 12:18 PM
vickij vickij is offline
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Thanks Tii,

It helps to know that others have gone thru this. I will be so happy when my blood type changes and I have some energy again.
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62 yr old female. dx AA 3/12.treated with ATG 4/12.dx MDS 4/13. MUD BMT on June 25th,2013
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  #6  
Old Mon Jan 27, 2014, 08:32 PM
evansmom evansmom is offline
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Evan went from O+ to his donor's A+ four months post BMT. Hang in there, the switch will come!
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Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.

www.caringbridge.org/visit/evanmacneil
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  #7  
Old Tue Jan 28, 2014, 05:17 AM
SLB SLB is offline
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Hi Vicki, hang in there! I took about 6 months to change over & start making red cells. The dr said I had pure red cell aplasia and it was totally ok. He said it can take even longer to change over. Eventually my hgb started holding, then ever so gradually increasing to normal levels. How are your other levels?
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Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
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  #8  
Old Tue Jan 28, 2014, 11:18 AM
vickij vickij is offline
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Sharnie

Dr said all of my other counts are good. wbc-2.5, rbc-2.60,hgb 7.6 ( dropped to 6 one week later ) platelet 83. BMB in November showed all donor. Just waiting on blood type to change over.
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62 yr old female. dx AA 3/12.treated with ATG 4/12.dx MDS 4/13. MUD BMT on June 25th,2013
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  #9  
Old Tue Jan 28, 2014, 09:50 PM
Heather8773 Heather8773 is offline
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Vicki idk if this helps but we were told counts drop before (while?) blood was changing over.
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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  #10  
Old Wed Jan 29, 2014, 02:49 AM
tserdogan tserdogan is offline
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Hi Vicki,

I had transplant 4,5 years ago.
I had waited 11 months for changing of blood type and I had taken two package blood every 15-20 days.Suddenly my hemo counts had increased and I no longer needed transfusions.
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  #11  
Old Wed Jan 29, 2014, 11:35 AM
vickij vickij is offline
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Thanks Heather & Tserdogon

Thanks for the info, it helps to know what others went thru. I am taking a lot of meds, I don't know if that slows the blood type change over. I am taking-
fluconazole,
penicillin V potassium,
hydrocodone,
potassium chloride,
methylprednisolone,
citalopram,
doxepin,
cyclosporine,
pantoprazole,
magnesium chloride,
lorazepam,
amlodipine,
acyclovir,
atenolol.
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62 yr old female. dx AA 3/12.treated with ATG 4/12.dx MDS 4/13. MUD BMT on June 25th,2013
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  #12  
Old Tue Jun 23, 2015, 02:32 PM
GoodDay5150 GoodDay5150 is offline
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I had a trans for PNH in Dec 2011. The only blood that I ever got was that of my donor, (if I rem corr). or the universal donor type. I do not rem my doc or med staff informing me of a spec time frame for blood type switch. I will ask my doc at my next visit if I rem. My guess wld be after your new cells engraft and start prod new blood cells. But I'm just guessing.
Mario
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