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Alternative Treatments Complementary and alternative medicine; natural and holistic approaches

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  #1  
Old Wed Aug 1, 2012, 08:51 PM
Hayitsmenadine Hayitsmenadine is offline
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Location: Long beach, ca
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Platelet increase remedies?

Hello everyone,

I have recently stopped taking cyclosporine and my platelets have dropped from 115 to 50. My Dr told me he would like me to start back on cyclosporine but after being on it for 14 months I would rather not. However, I also do not want bruises all over my body again. Surprisingly my hemoglobin is at 9.6, which is the highest it has been, but I also have PNH so am doing Soliris every 12 days.

I was researching alternative methods like shark liver oil and papaya leaf tea and was wondering if anyone has tried it and what your experience was with it? Or if there any other methods I can do to improve my platelets?

Thanks, Nadine
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  #2  
Old Fri Apr 19, 2013, 08:38 AM
glitterandlace glitterandlace is offline
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People live with platelets levels of 50 for years and live normal lives. 50 is not that low at all..... Please do not get transfusions with your platelets that high. Try to supplement with vit D3 to stabilize your platelets and maybe they won't drop any more,, vit D3 made my platelets rise after about 4 months of taking 4,000 mg a day. I also do raw food diet, juicing, and occasional organic meat. If I were you I would just clean up my diet and detox through coffee enemas & juicing. I am going to try my first coffee enema soon just ordered the stuff online. Avoid caffeine, alcohol, aspirin, carbonated drinks, vinegar, fermented foods, and any other blood thinners.

One more thing,, the people with AA who have juiced and ate a clean diet have noticed that no matter how low their platelets get they have little to no bruising,,, even the few times my platelets reached 8K last year I had no bruises on my entire body. NONE. no mouth sores or gum bleeding either. sometimes the red spots on my chest or arms,, but they clear up fast.
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  #3  
Old Sat Apr 20, 2013, 09:02 PM
gramous gramous is offline
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Join Date: Apr 2012
Location: belgium
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hello,

we've tested some alternative therapy for increased the red blood cells but we've seen that increased also platelets (unfortunatly my boyfriend's platelets are very high (1700000))..That can perhops help you... curcuma + blackpeper (1g curcuma+0,5g black peper/day), fresh royal jelly (not lyophilised)(0,5 g /day), spiruline/chlorella (10 caps per day but not used if you're taking chemotherapy).
I hope that can help you.
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boyfriend with RARS-T dx 11/02//dx : hb 11,5; plt 870000, wh : 6500//Before fasting cure (13/04): hb: 8,9; plt 2200000; white:6000//After fasting cure (14/09): hb 12,5; platelets 400000, wh 3000.//Now (15/08) : hb : 11,plt : 650000, wh 3000// hydrea 1c/day and cardioaspirin, 1c/day,age: 56 y.
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  #4  
Old Sun Apr 21, 2013, 05:59 PM
4bcsboys 4bcsboys is offline
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long-term cyclosporing

Nadine,
It's not really the direction of your question, but I was on cyclosporine for five years. The doses were minimal (modified cyclosporine 200 mg a day) so it really wasn't enough to cause any side effects, except accellerate some facial hair growth. OK, so cosmetic, dealt with it. I'm not saying this is your answer for YOU, but what your doctor is recommending is not unrealistic or untried. You two need to evaluate your side effects to see if a balance exists.

Best wishes!
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Wife and mother of three young boys, diagnosed at age 39 with AA 2007; treated with ATG and cyclosporine; progressed to MDS end of 2012; MUD on June 26, 2013.
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  #5  
Old Mon Jun 3, 2013, 07:23 AM
Ved Ved is offline
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Join Date: May 2013
Location: Bangalore,Karnataka,India
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Platelets increase with Papaya leaf

Hi,
My Fatherin law is aged 77 years and an MDS patient. Recently his platelet counts dropped from 1,50,000 to 35,000. He was given RDP- 5 no's but platelets did not increase. After giving SDP (Single Donor Platelets), platelets increased to 85,000. But one week back again it dropped to 33000 in a matter of 10 days from 85000. On some doctors advice we started giving Papaya leaf juice (after washing the papaya leaf thoroughly and grinding the leaf, extracting juice from the same) 2 spoons in the morning and 2 spoons in the evening. We tested the platelets count after a week and found that the platelets have increased to 100000. We are quite happy about this and wanted to share with you all as it avoids unnecessary transfusion and saves money.
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  #6  
Old Mon Jun 3, 2013, 08:51 AM
Marlene Marlene is offline
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Thanks for sharing the information on the papaya leaf. Glad you found something to help.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 146K.
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  #7  
Old Tue Jun 4, 2013, 07:17 AM
Ved Ved is offline
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Hi Marlene,
I am curious to see whether it is working for you also. Request you to share the platelets count after 1week of taking papaya leaf juice.
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  #8  
Old Tue Jun 4, 2013, 09:00 AM
Marlene Marlene is offline
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Hi Ved,

John only gets his blood checked once or twice a year now so we don't have a good way to assess the effectiveness of anything on his platelets. He's been in a partial-stable remission for the past 5 years and is 11 years out from treatment. His platelets are stable in the 95-100K range.

In the past, we never found anything specific that would raise any of his counts. We never tried papaya leaf extract though.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 146K.
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  #9  
Old Fri Jun 7, 2013, 10:19 AM
Ved Ved is offline
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Location: Bangalore,Karnataka,India
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Hi Marlene,
It is good that he has stable platelet counts. But I feel there is nothing wrong in giving the papaya leaf juice regularly, which will definitely boost the platelet count to the required range.

Regards
Ved
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  #10  
Old Fri Aug 23, 2013, 01:36 AM
TonyBegg TonyBegg is offline
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Join Date: Jul 2013
Location: Santa Fe, NM
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Papaya Leaf Extract

Karin who has had PNH for 23 years urgently required her first blood transfusion (apart from one after a pregnancy 20 years ago which elevated complement levels and decimated her blood) on July 5th this year. She also needed platelet transfusions (down to 13000) and the platelets just plummeted within days so it was as if she was not producing any of her own (neutrophils 0.75 x 10^9 per Liter so probably also moderate AA). On August 9th she started taking Papaya Leaf Extract. Since she has had two CBCs 1 week apart at the hematologist and the platelets were stable at 17000. The hematologist was surprised and asked whether she was taking the Papaya Leaf extract Karin had mentioned to her on a previous visit before the extract arrived. So she has saved herself one platelet transfusion so far. Will keep you posted. She is also taking Rosmarinic Acid capsules, but at a sub-therapeutic dose. This is a complement inhibitor, binding at C3b so should reduce hemolysis. Do not know how to make it bioavailable enough to significantly affect hemolysis. LDH went from 623 to 630 in same period suggesting perhaps RBC production up too, activating the PNH.
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  #11  
Old Sat Jan 14, 2017, 09:21 PM
medicalenigma medicalenigma is offline
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Join Date: Jan 2017
Location: Laguna Woods, CA
Posts: 14
Promacta

HI Nadine, check with your doctor about the drug Promacta approved just a few years ago. Solved my platelet issues.

Quote:
Originally Posted by Hayitsmenadine View Post
Hello everyone,

I have recently stopped taking cyclosporine and my platelets have dropped from 115 to 50. My Dr told me he would like me to start back on cyclosporine but after being on it for 14 months I would rather not. However, I also do not want bruises all over my body again. Surprisingly my hemoglobin is at 9.6, which is the highest it has been, but I also have PNH so am doing Soliris every 12 days.

I was researching alternative methods like shark liver oil and papaya leaf tea and was wondering if anyone has tried it and what your experience was with it? Or if there any other methods I can do to improve my platelets?

Thanks, Nadine
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