Home         Forums  

Go Back   Marrowforums > Regional Discussions > Support Groups and Communities of Hope
Register FAQ Search Today's Posts Mark Forums Read

Support Groups and Communities of Hope Local support group news and activities

Reply
 
Thread Tools Search this Thread
  #1  
Old Fri Mar 8, 2013, 01:30 PM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 860
San Francisco Bay Area California MDS Support Group


The San Francisco Bay Area MDS Support Group is open to all patients, family members, and caregivers in the Bay Area, California.

The group is designed to provide mutual support and education to individuals with MDS who may feel a little less alone by meeting with others whose situations are similar to their own.

Every other month the group has invited speakers, who cover a variety of topics such as current information about MDS, therapeutic approaches, clinical trials, nutrition, and many others. The meetings are open sessions in the intervening meetings.

Meeting Schedule:
First Friday of each month
1:30-3:00pm
Location:
Stanford Cancer Center
875 Blake Wilbur Drive
Palo Alto, CA 94305
Google map

Meet in the Second Floor Conference Room CC2105.
The MDS Support Group is led by
Lenn Fechter, RN, BSN

Andrea Linder, RN, MS
For more information about the San Francisco Bay Area MDS Support Group, email cancersupportivecare@stanfordmed.org or phone 650-725-9456.

For more information about Communities of Hope support groups, see the Aplastic Anemia & MDS International Foundation's Communities of Hope page.
Reply With Quote
  #2  
Old Fri Mar 8, 2013, 01:37 PM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 860
Meetings in 2013

Friday January 4, 2013
Open Session
Friday February 1, 2013
Surviving with MDS
Kelly Bugos, NP
Friday March 1, 2013
Open Session
Friday April 5, 2013
Transfusions, Treatments, Side Effects and More Part II
Sandy Burgess, RN, OCN
Stanford Infusion Treatment Area (ITA)
Friday May 3, 2013
Open Session
Friday June 7, 2013
MDS Roundtable
Dr. Jason Gotlib
Associate Professor, Department of Hematology
Stanford University
Friday July 5, 2013
no meeting this month
Friday August 2, 2013
Daily Nurturing Practices
Lori Klein, Cancer Care Chaplain
Friday September 6, 2013
Open Session
Friday October 4, 2013
Transitions and Palliative Care:Hospice of the Valley
Ed Wendler, Ambassador and Volunteer

Living every moment with a Serious Illness
Christine Merriman, MSW, LCSW
Friday November 1, 2013
Open Session
Friday December 6, 2013
no meeting this month

Last edited by Marrowforums : Mon Jul 22, 2013 at 06:38 PM. Reason: updated July-December
Reply With Quote
  #3  
Old Mon Jul 22, 2013, 06:42 PM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 860
The 2013 schedule shown in the previous post has been updated with speakers and topics for August 2 and October 4. No meeting is planned for December.

For further information, for answers to questions, or to make suggestions, contact Lenn Fechter using the contact information in the first post above.
Reply With Quote
  #4  
Old Wed Jan 29, 2014, 10:12 PM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 860
Meetings in 2014

Dates: The first Friday of each month
Time: 1:30pm - 3:00pm


Friday February 7, 2014
What is this iron business all about?
Carolyn Pittenger RN, MS, MSCN
Friday March 7, 2014
Integrative Medicine for MDS
Sue Kim, MD, MS, DABMA,ABIHM
Friday April 4, 2014
Open Session
Friday May 2, 2014
MDS Roundtable
Jason Gotlib, MD, MS
Friday June 6, 2014
MDS: What’s new about our disease?
Peter Greenberg, MD
Friday July 4, 2014
Holiday; no meeting this month
Friday August 1, 2014
Daily nurturing practices and living with uncertainty
Rabbi Lori Klein
Friday September 5, 2014
Transfusions, Treatments, Side Effects and more
Sandy Burgess, RN,OCN
No registration is necessary. Just drop in. Call 650-725-9456 to confirm the date of each meeting. Parking passes are provided for the Pasteur Visitor Garage.

For more information email cancersupportivecare@stanfordmed.org or phone 650-725-9456.
Reply With Quote
  #5  
Old Fri Nov 14, 2014, 10:41 AM
JeriM JeriM is offline
Member
 
Join Date: Feb 2013
Location: Bay Area, CA
Posts: 14
AA in SF Bary Area

Can anyone recommend a doctor at UCSF?
Oops - AA in SF BAY Area.
Reply With Quote
  #6  
Old Fri Nov 14, 2014, 07:03 PM
triumphe64 triumphe64 is offline
Member
 
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 439
Quote:
Originally Posted by JeriM View Post
Can anyone recommend a doctor at UCSF?
Oops - AA in SF BAY Area.
This name came up when I did a search for AA at their website.

http://www.ucsfhealth.org/karin.gaensler
__________________
Dallas, Texas - Age 76 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Reply With Quote
  #7  
Old Fri Nov 14, 2014, 07:46 PM
JeriM JeriM is offline
Member
 
Join Date: Feb 2013
Location: Bay Area, CA
Posts: 14
AA doctor at UCSF

Yes, I saw Dr Gaensler's name on their site and have left a few phone messages with no response from her office. I was hoping someone had some personal experience with her or someone else. If not at UCSF, perhaps someone else in the Bay Area??
Thank you!
Reply With Quote
  #8  
Old Sat Nov 15, 2014, 12:56 PM
Hopeful Hopeful is offline
Member
 
Join Date: Jan 2009
Location: California, USA
Posts: 689
Hi Jeri,

Dr Jason Gotlib at Stanford is excellent. He does AA and MDS and is very knowledgable and dedicated. He saved my life.

Interestingly...I also tried contacting UCSF in the beginning of my diagnosis and never had my phone call returned! I contacted Stanford and had an appointment for later that week.
__________________
52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
Reply With Quote
  #9  
Old Sat Nov 15, 2014, 02:35 PM
JeriM JeriM is offline
Member
 
Join Date: Feb 2013
Location: Bay Area, CA
Posts: 14
Thank You!

Thank you so much! I will contact him. That's exactly what I needed.
Reply With Quote
  #10  
Old Wed Jan 14, 2015, 01:54 AM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 860
2015 Meetings

Meetings are the first Friday of the month.

Meetings in 2015:
  • Friday January 2
  • Friday February 6
  • Friday March 6
  • Friday April 3
  • Friday May 1
  • Friday June 5
  • Friday July 3
  • Friday August 7
  • Friday September 4
  • Friday October 2
  • Friday November 6
  • Friday December 4 (tentative)
Time: 1:30pm - 3:00pm

Location:
Stanford Cancer Institute (2nd Floor Conference Room CC2105)
875 Blake Wilbur Drive
Palo Alto, CA 94305

Google map
If you plan to attend any of these meetings, please RSVP to Lenn Fechter or Andrea Linder at 650-725-0744 or by email.
For more information about Communities of Hope support groups, see the Aplastic Anemia & MDS International Foundation's Communities of Hope page.
Reply With Quote
  #11  
Old Mon Feb 8, 2016, 12:11 AM
Marrowforums Marrowforums is offline
Marrowforums.org
 
Join Date: Jul 2006
Posts: 860
2016 Meetings

Meetings are the first Friday of the month.

Meetings in 2016:
  • Friday March 4
  • Friday April 1
  • Friday May 6
  • Friday June 3
  • Friday August 5
  • Friday September 2
  • Friday October 7
  • Friday November 4
Time: 1:30pm - 3:00pm

Location:
Stanford Cancer Institute (2nd Floor Conference Room CC2105)
875 Blake Wilbur Drive
Palo Alto, CA 94305

Google map
If you plan to attend any of these meetings, please RSVP to Lenn Fechter or Andrea Linder at 650-725-0744 or by email.
For more information about Communities of Hope support groups, see the Aplastic Anemia & MDS International Foundation's Communities of Hope page.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
One-day Patient Conference in San Francisco California, July 18, 2015 Marrowforums News and Events 7 Thu Jul 23, 2015 05:49 PM
San Francisco/UCSF LLS/Community of Hope Support Group Marrowforums Support Groups and Communities of Hope 0 Fri Dec 5, 2014 01:13 AM
Folsom California MDS Patient Support Group Marrowforums Support Groups and Communities of Hope 0 Mon Apr 22, 2013 12:56 PM
Puget Sound MDS Support Group Marrowforums Support Groups and Communities of Hope 0 Sat Jan 19, 2013 05:48 PM
Vancouver Area Family Support Group Marrowforums Canada 0 Sat Aug 25, 2012 01:16 PM


All times are GMT -4. The time now is 07:30 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2018 Marrowforums.org