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Old Tue Oct 13, 2015, 07:05 PM
kmartino07 kmartino07 is offline
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Join Date: Sep 2015
Location: Farrell, PA USA
Posts: 26
Question Anybody From Pittsburgh?

Anybody here from the Pittsburgh area? Just recently moved to be closer to my family during this stage in my life. I'll be getting treated at West Penn hospital. I was curious about people's experience. If any....
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Kamara, 26, mother of 2.diagnosed AA July 2015, post BMT. currently on tacrolimus, acyclovir, diflucan, cipro. No sign of GVHD so far.
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Old Tue Mar 15, 2016, 02:37 PM
Yvonne Yvonne is offline
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Join Date: Mar 2014
Location: Douglassville, PA
Posts: 3
Smile Im here :)

Hi Kamara,

I don't know what all the initials in your post mean but I have Aplastic Anemia with PNH. I am near Reading ,PA. My thoughts are with you.

Yvonne
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Old Wed Mar 16, 2016, 12:45 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 107
Hi Kamara. I had a BMT for PNH 4 yrs ago. I had symptoms for a very long time before then, but I ignored them until I got to the point where my HGB was abt 7.4! I have some fairly mild GVHD, but it has been well managed by my doctor and associated medical staff. A lot of tests, a lot of meds and a lot of appointments, but both my doctor and I agree that my experience has been good, all things considered. Please let us know how you are doing.

Mario
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MARIO, 46, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD.
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