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#1
Fri Apr 29, 2016, 02:00 AM
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Newbie needing guidance
Just Dx with Aplastic and Megaloblastic and don't want conventional treatment looking for others who go the functional medicine route.
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#2
Fri Apr 29, 2016, 10:02 AM
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Welcome to the forum. What is the " functional medicine route"?
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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#3
Fri Apr 29, 2016, 12:32 PM
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I don't recall anyone on this forum who used functional medicine as a sole treatment plan for aplastic anemia/megaloblastic anemia. We used aspects of it post treatment to help heal.
Most have a conventional hematologist and work with alternative practitioner at the same time.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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#4
Fri Apr 29, 2016, 09:49 PM
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Good luck. This is a serious disease.
Contact www.AAMDS.org and talk to the patient educator about your plan.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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