Home         Forums  

Go Back   Marrowforums > Treatments > Transfusions and Iron Overload
Register FAQ Search Today's Posts Mark Forums Read

Transfusions and Iron Overload Blood and platelet transfusions, iron testing and treatments

Reply
 
Thread Tools Search this Thread
  #1  
Old Sat Nov 5, 2011, 09:03 AM
cheri cheri is offline
Member
 
Join Date: Nov 2010
Location: Tuckahoe New Jersey
Posts: 243
Ferratin level 6695!

Yikes! I just got tested after taking a break from Exjade for a month due to GI issues. My fever seemed to create the need for more blood than usual. Hopefully, that is resolved for now....
I am hoping Exjade works again...fast!
__________________
Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
Reply With Quote
  #2  
Old Sat Nov 5, 2011, 02:51 PM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Ferritin

Hi Cheri,
Too bad with the high ferritin level! Remember that infections lead to increased ferritin and you have had pneumonia. I think that if the ferritin level has increased suddenly it can decrease fast when it is treated.

When my bone marrow suddenly "got tired" during late spring and I had to get txs every week my ferritin level increased to 5600 though I was treated with Desferal in connection with txs and a low dose of Exjade (due to low WBCs). Then I started to take Thalidomide and didn't need txs. After 6 months my ferritin was 1400 and now it is about 1000.
Kind regards
Birgitta-A
Reply With Quote
  #3  
Old Sat Nov 5, 2011, 08:26 PM
cheri cheri is offline
Member
 
Join Date: Nov 2010
Location: Tuckahoe New Jersey
Posts: 243
Hi Birgitta
Thanks for that! You are a wealth of information...nobody told me about the infection/ferratin connection.....it did come up awfully fast....
It is amazing what affects your counts....I have spent so much time worrying
about things that if someone told me what cause/effects were, it would be less distressing!
Like for example, that certain meds/infections can affect bone marrow biopsies.
Sometimes I feel that, and I guess rightly so, that Doctors only tell you what you need to know today. But I like to know the bigger picture...

Additionally I am now on 960 of Neupogen to get my white count up....for the last week. Here's hoping that the reduction of fever makes that hold a little steadier. What is the longest/largest dose recommended? I was thinking it may be time for Neulasta....they say that it affects blasts, but what is the difference?
__________________
Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
Reply With Quote
  #4  
Old Sun Nov 6, 2011, 04:49 AM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Neupogen/Neulasta

Hi Cheri,
Thank you for the kind words !

I have not read anything about the longest or largest dose of Neupogen recommended - I think you should take as much as you need to make your neutrophils high enough.

If they are 1.5 you should be safe. Many members of this forum manage well with vey low neutrophils.

The difference between Neupogen and Neulasta is that Neulasta is a long-acting version of Neupogen. This means that you don't have to take Neulasta so often but it is more difficult to monitor. As far as I understand none of these drugs increase blast cells.
Kind regards
Birgitta-A
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Normal EPO level? Data MDS 6 Wed Dec 17, 2014 08:47 AM
Ferritin level vikasgoyal Transfusions and Iron Overload 24 Thu Nov 1, 2012 11:39 AM
If Non Response to ATG/cyclo Counts Return To Pre-Treatment Level? Susan AA 2 Mon Jan 9, 2012 01:57 AM
EPO level and Aranesp kjanikian MDS 1 Tue Jul 21, 2009 07:43 AM
EOS Level climbing after BMT ljvoight Transplants 12 Sat Feb 23, 2008 11:19 AM


All times are GMT -4. The time now is 11:33 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org