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MDS Myelodysplastic syndromes

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Old Sun Aug 30, 2015, 01:30 PM
bailie bailie is offline
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Survive-ability appointment?

Has anyone had one of these? I am scheduled for one and I am wondering if it is worth the time? I will ask my doctor if it is really necessary or just one of those things they schedule after a first year?
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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Old Thu Sep 3, 2015, 10:09 AM
traceyn11 traceyn11 is offline
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Hi Bailie - Did you have your appt. yet or find out any more info about it?
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Tracey, mom & wife,age 58, dx MDS RAEB-2 4/15, normal cytogenetics, Update: SCT cancelled. Blasts at 67%. New dx AML.
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Old Thu Sep 3, 2015, 11:07 AM
bailie bailie is offline
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Hello Tracey,
I haven't had the appointment yet (October 14). I think it might just be an automatic appointment after a person reaches the one-year mark. From what I have been told by a couple of the nurses, it will be about what a person might expect in Year Two and after. Also, about turning some of my health back to my primary care physician who I haven't seen in about 18 months.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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