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  #1  
Old Sat May 2, 2009, 08:23 PM
Aethereal Aethereal is offline
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Join Date: May 2009
Location: Kirkland Lake, Ontario, Canada
Posts: 4
Red face Ontario, Canada

My daughter is 10 and was just diagnosed with AA. We are currently waiting to go bk in June to CHEO for another aspirate and extraction, and then proceed with treatment, I have had my hla tested, as well as my oldest son, if my son is a mtch, the doctor wants to proceed straight to a bone marrow transplant. We live in a remote town in Northeastern Ontario, I would love to talk to other parents for some support.
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Melissa, mother of Taylor age 10, diagnosed SAA April 2009; currently awaiting treatment by sibling bone marrow transplant if son is a match.
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  #2  
Old Sun May 3, 2009, 10:18 AM
sandra sandra is offline
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Join Date: Mar 2007
Posts: 35
You should probably get in touch with Nicole, her son is about the same age as your daughter. He was diagnosed with moderate AA, failed one ATG course, and went on to do a transplant at Sick Kids in Toronto.

www.caringbridge.org/visit/evanmacneil

Also, if you are interested in obtaining additional information, I have medical articles pertaining to pediatric AA in pdf form, I can send them to you if you post your e-mail address.

Sandra
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  #3  
Old Sun May 3, 2009, 11:36 PM
Aethereal Aethereal is offline
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Join Date: May 2009
Location: Kirkland Lake, Ontario, Canada
Posts: 4
Thank you for the help. My email is mcoupland@live.ca
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Melissa, mother of Taylor age 10, diagnosed SAA April 2009; currently awaiting treatment by sibling bone marrow transplant if son is a match.
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  #4  
Old Thu May 21, 2009, 08:34 AM
Doug Mylie Doug Mylie is offline
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Join Date: Feb 2008
Location: Sherwood Park, Alberta, Canada
Posts: 37
AAMAC- Ontario Chapter Coorrdinator

If you go to the Following Link, you will find a List of Canadian Chapter Coordinators. The Ontario Chapter Coordinator, Andy May would be an excellent resource for you to contact.

http://www.aamac.ca/
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  #5  
Old Thu May 21, 2009, 08:25 PM
Aethereal Aethereal is offline
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Join Date: May 2009
Location: Kirkland Lake, Ontario, Canada
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Smile thanks

I have had some email correspondance with the May family, and with the chapters of the aamac, thank you for the tip
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Melissa, mother of Taylor age 10, diagnosed SAA April 2009; currently awaiting treatment by sibling bone marrow transplant if son is a match.
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