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AA Aplastic anemia

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  #1  
Old Fri Apr 29, 2016, 02:00 AM
Livinginablender Livinginablender is offline
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Join Date: Apr 2016
Location: Oregon
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Newbie needing guidance

Just Dx with Aplastic and Megaloblastic and don't want conventional treatment looking for others who go the functional medicine route.
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  #2  
Old Fri Apr 29, 2016, 10:02 AM
bailie bailie is offline
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Join Date: Dec 2013
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Welcome to the forum. What is the " functional medicine route"?
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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Old Fri Apr 29, 2016, 12:32 PM
Marlene Marlene is offline
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Join Date: Oct 2006
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I don't recall anyone on this forum who used functional medicine as a sole treatment plan for aplastic anemia/megaloblastic anemia. We used aspects of it post treatment to help heal.

Most have a conventional hematologist and work with alternative practitioner at the same time.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 146K.
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Old Fri Apr 29, 2016, 09:49 PM
triumphe64 triumphe64 is offline
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Good luck. This is a serious disease.

Contact www.AAMDS.org and talk to the patient educator about your plan.
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Dallas, Texas - Age 75 - Pure Red Cell Aplasia since March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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