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Old Wed Jan 23, 2013, 11:44 AM
Marrowforums Marrowforums is offline
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One-day Patient Conference in Cleveland, OH, June 22, 2013

A free one-day patient conference will be held in Cleveland, OH on Saturday, June 22, 2013. The conference, hosted by the Aplastic Anemia & MDS International Foundation (AA&MDSIF), is one of six one-day patient conferences in 2013.

This will be a multi-track conference for AA, MDS, and PNH patients and their families. Those who live in the midwest or northeast should plan to attend this conference or the September conference in Boston, Massachusetts. Those who live in the southeast should plan to attend the conference in November in Tampa, Florida.

The conference will include parallel (simultaneous) sessions on AA, MDS, and PNH, sessions to help you live with and cope with these diseases, and professionally-facilitated support sessions with your peers.

Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight.

Conference Program

Come hear about the latest information about diagnosis, treatment (including transplants), and medical research from leading experts, including:
  • Dr. Laurence Boxer, MD, University of Michigan C.S. Mott Children's Hospital
  • Dr. Jack Goldberg, Penn Presbyterian Medical Center
  • Dr. Mikkael Sekeres, Cleveland Clinic
  • Dr. Ramon Tiu, Cleveland Clinic
Patients and family members will also be able to
  • meet medical experts face-to-face
  • hear about the latest treatments and medical research
  • learn skills for managing life with a bone marrow failure disease
  • have your questions answered
  • learn how to be your own advocate for the best care
  • get to know other patients and family members like yourselves
  • attend professionally-facilitated support sessions
A special lunch program will let conference attendees meet and talk, with an emphasis on ways to stand up for your health.

Living with Aplastic Anemia, MDS or PNH

When:
Saturday, June 22, 2013, from 8:30am to 5:00pm
Check-in begins at 7:30am.
Where:
Crowne Plaza Cleveland Airport (Google map)
7230 Engle Road, Middleburg Heights, OH 44130
440-243-4040 (main), 877-227-6963 (toll-free reservations)

Discounted hotel rates are available if you make reservations by Thursday May 30, 2013.
Hotel parking is free.
See other hotel information on the AA&MDSIF event page.
Registration:
Use the online registration form to register for the conference.
The registration deadline is Wednesday, June 12, 2013.

For more information see the AA&MDSIF event page.

If you plan to attend this conference, post in this thread to let other attendees know to look for you!

After the conference, let us know what you thought of the event.
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Old Wed Jun 12, 2013, 07:25 PM
Marrowforums Marrowforums is offline
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At the conference Dr. Kenneth Cooke, a pediatric hematologist from the Johns Hopkins Sidney Kimmel Comprehensive Cancer Center, will lead For Kids Only, a workshop for children and teens (ages 6 to 16) with bone marrow failure disease, as well as for siblings and children of parents with these diseases.

In the afternoon Dr. Cooke will be meeting and talking with parents in a Parents Only Q & A Forum. This is a great way for parents to meet other parents and have questions answered.
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