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MDS Myelodysplastic syndromes

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  #1  
Old Mon Feb 29, 2016, 11:57 PM
Wife of Diver Down Wife of Diver Down is offline
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Location: Miami,FL
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Raise awareness on MDS and support research to help our loved ones affected

Since my husband died my daughter has become more involved with raising awareness about this devastating disease. Too many people have not heard of MDS and think it is multiple sclerosis or muscular dystrophy. We need to get the word out so we can find better treatments. She has launched an awareness and fundraising campaign through the MDS foundation. Each tweet #stoptheMaDnesS will donate 5 dollars toward MDS research. See the link below and share withe all you can

http://www.mds-foundation.org/stopthemadness/
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  #2  
Old Tue Mar 1, 2016, 12:33 AM
Neil Cuadra Neil Cuadra is offline
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It's wonderful of your family to organize this campaign.

And quite appropriate that you posted it on Rare Disease Day.
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  #3  
Old Tue Mar 1, 2016, 01:13 PM
Wife of Diver Down Wife of Diver Down is offline
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Help those we love who have MDS

Yes- ‪#‎stoptheMaDnesS‬ campaign – was intentionally launched on Rare Disease Day and will run through March

For every tweet hashtagging #stoptheMaDnesS, the pharmaceutical partner Celgene will donate $5 to the MDS Foundation for research.

Help us make the voice of this disease heard!

If you don’t have a twitter account your children probably do

Click or forward the link- http://www.mds-foundation.org/stopthemadness/

Music "One Day At A Time" by Janna Pelle -
https://soundcloud.com/jannapellemus...ay-at-a-time-1
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Old Tue Mar 1, 2016, 03:34 PM
PaulS PaulS is offline
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Hi - I'm sorry for your loss -
Thank you and especially your daughter of organizing this - Now I'll have to figure out twitter.

Best wishes,

Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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