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MDS Myelodysplastic syndromes

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  #1  
Old Thu Jun 14, 2018, 05:00 PM
Bossywife Bossywife is offline
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CEBPA (VAF 0.59) variant

So I just received a report regarding my husband's Myeloid Gene Panel and was wondering if anyone else has experience with this mutation?

CEBPA (VAF 0.59) but it also says "CEBPA VUS noted"

I'm currently googling, but holy man... there's a lot of info.
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Husband (60) dx RAEB1 Apr 2015 after long term bad CBCs (first discovered Apr 2008 after an unknown infection had him hospitalized), currently on watch & wait with monthly bloodwork. Myeloid Gene Panel testing done Aug 2017, showed nothing worrisome.
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Old Sat Jun 16, 2018, 01:37 AM
Pearl Pearl is offline
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Quote:
Originally Posted by Bossywife View Post
So I just received a report regarding my husband's Myeloid Gene Panel and was wondering if anyone else has experience with this mutation?

CEBPA (VAF 0.59) but it also says "CEBPA VUS noted"

I'm currently googling, but holy man... there's a lot of info.
I read all the posts on in this forum with great care. I always have difficulty making sense of your posts, which seem disjointed, and now this. It would help me at least to have a comprehensive picture of the blood and bone marrow test results. That would be the way to get the most help.
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Old Sun Jun 17, 2018, 04:51 AM
Bossywife Bossywife is offline
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Originally Posted by Pearl View Post
I read all the posts on in this forum with great care. I always have difficulty making sense of your posts, which seem disjointed, and now this. It would help me at least to have a comprehensive picture of the blood and bone marrow test results. That would be the way to get the most help.
I'm not entirely sure how you would want me to be more clear. My husband shows a mutation on his gene panel called CEBPA. I've looked back to the posts of mine that you've commented on, and honestly I have no idea what you mean by disjointed.

Where we live it takes a while to get into see a doctor and specialist appointments are 6 months apart. I use this forum to get advice from people who possibly have similar experiences. If you don't have a similar experience, I wouldn't expect you to research it for me, just move along and ignore my post.

I read posts here that are so long and rambling I have a hard time understanding what they are asking. I don't make a big deal about it, I just move on. I hope you can do the same.
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Husband (60) dx RAEB1 Apr 2015 after long term bad CBCs (first discovered Apr 2008 after an unknown infection had him hospitalized), currently on watch & wait with monthly bloodwork. Myeloid Gene Panel testing done Aug 2017, showed nothing worrisome.
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