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Old Wed Jun 13, 2018, 10:29 AM
jcbuzbee jcbuzbee is offline
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Join Date: Jun 2018
Location: Brooksville, FL
Posts: 1
Newly Diagnoised Primary Myloidfibrosis

I have recently been diagnosed with primary myloidfibrosis, intermediate Phase 1. I do not have any symptoms other that a high WBC count (15.1) and a slightly enlarged spleen. My RBCs are dropping, but not yet in the danger zone (3.85 RBC and 13.1 HGB). I tested positive for the JAK2 mutation and have 2% myeloblasts. I am currently on watch and wait. I don't know what to expect as this is all so new to me. My doctor said I could stay in W&W for years or I could need treatment in a couple of months. Am scheduled to go back to him next month to see if anything has changed. Feel like a time bomb is waiting to go off. What can I expect?
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