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MDS Myelodysplastic syndromes

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  #26  
Old Thu Oct 18, 2012, 07:42 PM
Chirley Chirley is offline
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Location: Logan City Australia
Posts: 1,100
Hi Sharnie, when my neuts used to hover at 0.0 to 0.1 my doctor refused to give me Neupogen too. He simply wasn't convinced that it didn't increase the blast count in predisposed people.

I only ever had 2 nasty infections which responded to antibiotics but I used to get fevers with every round of Vidaza which we ended up attributing to a drug reaction.

Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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  #27  
Old Fri Oct 19, 2012, 09:21 AM
yaka yaka is offline
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Are there any foods that anyone knows of that raise platelet levels? If so, can you post back. I want to see what we can do for my mother nutritionally.

Thanks,
Yaka
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