intro from los angeles

[otter]

hello from los angeles i have recently as of few day ago been dx with MDS. it is a complication of my chronic lymphocytic leukemia treatments . i have had platelet problems from the start and have had to deal with bone marrow failure before but i know this is going to be a new challenge in treatment issues. i have been looking into a MUD transplant for the past year at city of hope. i am not sure of what this new diagnosis will mean in my treatment decisions yet . look forward to reading the forum and getting an idea of possibly what to expect. cheers otter

[Ruth Cuadra]

Hi, Otter.

Welcome to Marrowforums! I'm in Los Angeles, too, and had my transplant for MDS at City of Hope. Are the doctors saying your MDS is secondary to your treatment for CLL? Do you know what subtype of MDS you have?

Needless to say, I am a big fan of City of Hope. I'd be happy to answer any questions you might have and share my experiences.

Regards,
Ruth Cuadra

[otter]

thanks i did see you lived in la yes my mds is from all the chemo i guess it is rare to happen i was dx from a fish test actually from a specialist online i haven't seen my dr yet i left him a message but haven't heard from him but i do know i have this my bone marrow is hypocellular and i had del 20q12 which isn't bad but the dr online said not to go by that as i have bad deletions in my cll. i am confused but am no stranger to the ups and downs of blood counts. did you just have your transplant? do you see dr. foreman if so he is excellent! did i post in the wrong place? the specialist online helps one of my leukemia lists he is not one to give wrong info. in case you were wondering i don't see my dr for a few weeks and am trying to figure out what i need to ask. i guess treatment is a big one as i just finished 6 rounds of chemo and only got a partial response. thanks. otter