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  #1  
Old Tue Sep 1, 2015, 03:50 AM
Chirley Chirley is offline
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Location: Logan City Australia
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Neupogen
After many years of neutropenia I've just started Neupogen injections.

I was just wondering how long I could expect a response from each injection or does it vary from person to person?

I had 300mcg on Saturday and was critically neutropenic again today (Tuesday) and needed another injection. This means that to maintain a safe range I would require Neupogen injections every second day which I'm assuming will be ongoing forever.

Does this sound like the normal dose and rate? Is there any such thing as a "normal" dose and rate?
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Old Tue Sep 1, 2015, 09:01 PM
Chirley Chirley is offline
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Also wondering....while I get a little bone pain (not as much as with the copper infusions) I have gotten diarrhoea within a few hours of both injections. Is this coincidental or is this an expected side effect?

It's not a good side effect for someone trying to maintain/gain weight. I'm hoping it's just an opportunistic infection that will resolve.
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Old Wed Sep 2, 2015, 12:20 AM
Cheryl C Cheryl C is offline
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Can't help with Neupogen questions Chirley, but it's great to know that you're getting some help with the neutropenia. I hope it proves to be really effective.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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Old Wed Sep 2, 2015, 05:23 AM
Chirley Chirley is offline
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I've just been told the second injection hasn't worked yet, aiming for number three tonight. Hopefully there will be some improvement tomorrow.
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Old Sat Sep 5, 2015, 04:19 AM
Chirley Chirley is offline
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Okay, so I can answer my own questions now. I need injections every second day and yes, diarhoea is a side effect.
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