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Living with Illness Coping with disease, getting help, dealing with family, staying optimistic, quality of life, hospice care

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  #1  
Old Fri Nov 30, 2018, 09:00 AM
whackerswalsh whackerswalsh is offline
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Join Date: Nov 2017
Location: Dublin, Republic of Ireland
Posts: 8
Our Journey's End

It is with sorrow that my amazing husband Patrick passed away on 17th November, after 3 years battling SAA which became MDS and subsequently AML... he fought until the very end never giving in to this sneaky disease.

Thank you to this forum for giving me the knowledge and insight to understand better the condition, to finding coping tools and to feel that there were others in the "same boat".

I wish everyone hope and don't give up no matter what.

Sincerely
Barbara (WW)
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Barbara wife of Patrick age 60, Diagnosed SAA Jan 2016, 2 Treatments of ATG partial response, continuing with Cyclosporine.
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  #2  
Old Fri Nov 30, 2018, 09:21 AM
Marlene Marlene is offline
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Location: Springfield, VA
Posts: 1,320
I am so sorry to hear of Patrick's passing. I'm sure you were a great comfort to him over the years in which he battled this disease.

With sympathy....Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 146K.
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  #3  
Old Fri Nov 30, 2018, 12:48 PM
Hopeful Hopeful is offline
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Location: California, USA
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My thoughts and prayers go out to you, Barbara. I am sorry for your loss.
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52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
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  #4  
Old Fri Nov 30, 2018, 03:27 PM
Neil Cuadra Neil Cuadra is offline
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Location: Los Angeles, California
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This is very sad news, Barbara. It's very generous of you to share the news with us in your time of loss.

You educated yourself, sought help wherever you could find it, and took care of Patrick. You're just as amazing as him.

I wish that you and Patrick had had more years together.
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Caregiver for my wife and founder of Marrowforums
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  #5  
Old Fri Nov 30, 2018, 04:26 PM
David M David M is offline
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Join Date: Sep 2009
Location: Fayetteville, TN
Posts: 58
Very Sorry

I am very sorry for your loss.
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David M, reds/whites/platelets slowly declining since 2000; hypocellular bone marrow; diagnosed as unexplained pancytopenia / "non-typical" slow moving AA; still not at treatment-required levels, but getting there.
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Old Fri Nov 30, 2018, 07:32 PM
Sally C Sally C is offline
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Location: Chesterfield, Va.
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Barbara,
I am so very sorry for your loss. I know you were a great source of comfort and love. I hope that brings you some measure of peace in the coming days.
Sally
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  #7  
Old Wed Dec 5, 2018, 08:48 AM
whackerswalsh whackerswalsh is offline
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Join Date: Nov 2017
Location: Dublin, Republic of Ireland
Posts: 8
Thank You

Thanks to everyone for your kind messages above.

As a quote says...."All is not lost, only changed"

Wishing everyone a Happy Christmas and I will light a candle for all those fellow carers and fighters wherever you are xxx
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Barbara wife of Patrick age 60, Diagnosed SAA Jan 2016, 2 Treatments of ATG partial response, continuing with Cyclosporine.
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