Home         Forums  

Go Back   Marrowforums > Treatments > Pediatrics
Register FAQ Search Today's Posts Mark Forums Read

Pediatrics Treatment for juvenile patients

Reply
 
Thread Tools Search this Thread
  #1  
Old Tue Oct 24, 2006, 05:47 PM
Sherri Sherri is offline
Member
 
Join Date: Mar 2006
Location: Cleveland, Ohio
Posts: 22
Cyclosporin dosage

We have recently gone from giving our daughter, Annalyse (age 6), her Cyclo 2x a day to only one. We have been tapering her since May with a steady small increase in counts.
Her current dosage was .45 2x day and we went to .9 once a day. So the same dosage, just all at once. Our Doc, Dr. Maciejewski , is highly respected and I trust his information. He said new studies are showing this to be a more effective distribution. Has anyone heard of this???

As a side note, at her first CBC her platelets dropped a little, from 77 to 61, her HGB went up from 12.1 to 12.5 and her ANC increased from 780 to 2300! It put all her WBC numbers in line %-wise.
__________________
Sherri

Mom to Annalyse, 6 years old
SAA 8/05 PNH 9/05 ATG 9/05 w/Cyclo
Currently in partial remission
Reply With Quote
  #2  
Old Sat Oct 28, 2006, 08:21 PM
skoopman skoopman is offline
Member
 
Join Date: Aug 2006
Location: CA
Posts: 54
Hi Sherri,
We always gave Michelle her CSA until it was no longer an option (when she was down to just one pill a day). It seems like giving it twice a day would keep a more constant level in her body, but what do I know? I am sure Annalyse is happy to only be taking it once a day however.
Suzanne
__________________
Mom to Michelle, age 7, SAA 6-1-05, rabbit ATG 6-3-05, MUD BMT 11-11-05
www.carepages.com Page name, Michelle5
Reply With Quote
  #3  
Old Tue Oct 31, 2006, 09:30 AM
Sherri Sherri is offline
Member
 
Join Date: Mar 2006
Location: Cleveland, Ohio
Posts: 22
Hi Suzanne-

Dr. M stated that new studies have shown the dosage to be more constant once a day vs two, due to timing of taking it 2X day. It seems to me to be better 2X a day as well. As much as I want her off this medication, I know we have to take it slow and do it smart! Her ANC took off, however, I am concerned about her platelets. I've seen more bruising and even some petechaie lately. Although Annalyse has always gotten petechaie in the 50's and 60's. She has a BMB tomorrow, so I am waiting and holding my breath!

And yes, Annalyse is thrilled to take it once a day! Thanks for your comments!
__________________
Sherri

Mom to Annalyse, 6 years old
SAA 8/05 PNH 9/05 ATG 9/05 w/Cyclo
Currently in partial remission
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Vidaza dosage kyis MDS 6 Sat Mar 19, 2016 10:15 PM
Cyclosporin effects on kidneys StephM Drugs and Drug Treatments 12 Fri Oct 11, 2013 03:15 PM
Was my dose of cyclosporin too high glitterandlace AA 10 Tue Jun 5, 2012 01:17 AM
ASH 2010 Deferasirox does not appear to interfere with Cyclosporin akita Transfusions and Iron Overload 0 Fri Dec 10, 2010 04:52 PM
Tacrolimus (aka Prograf) instead of Cyclosporin, anyone else? Jennifer J Drugs and Drug Treatments 5 Sun Jul 25, 2010 10:14 AM


All times are GMT -4. The time now is 09:13 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org