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Old Sat Jan 28, 2017, 12:43 AM
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One-day Patient Conference in Newark, New Jersey, September 16, 2017

A free one-day patient conference will be held in Newark, NJ, in the New York City Metro Area, on Saturday, September 16, 2017. The conference, hosted by the Aplastic Anemia & MDS International Foundation (AA&MDSIF), is one of six one-day patient conferences in 2017.

The conference is for AA, MDS, and PNH patients and their families, for people who want information about the related diseases of AML, CMML, MPNs, PRCA, and GVHD, and for medical professionals who care for these patients.

The conference will include parallel (simultaneous) sessions on AA/PRCA, MDS/AML/CMML/MPNs, and PNH, as well as sessions on transplants, genetics, and wellness issues, and professionally-facilitated support sessions with your peers.

Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight. There will a Friday Night Social the evening before the conference.

Conference Program

Come hear the latest information about diagnosis, treatment, and medical research from leading experts, including these physicians:
  • Dr. Hugo Castro-Malaspina, Memorial Sloan Kettering Cancer Center
  • Dr. Stuart Goldberg, Hackensack University Medical Center
  • Dr. Sangmin Lee, Weill Cornell Medicine
  • Dr. Shymala Navada, Mount Sinai Medical Center
  • Dr. Roni Tamari, Memorial Sloan Kettering Cancer Center
Patients and family members will also be able to
  • meet medical experts face-to-face
  • hear about the latest treatments and medical research
  • learn skills for managing life with a bone marrow failure disease
  • have your questions answered
  • learn how to be your own advocate for the best care
  • get to know other patients and family members like yourselves
  • attend professionally-facilitated support sessions

AA&MDSIF Patient and Family Conference: Living with Aplastic Anemia, MDS, or PNH

When:
Saturday, September 16, 2017, 8:30am to 3:30pm
Check-in begins at 8:00am.
Where:
Renaissance Newark Airport Hotel (Google map)
1000 Spring Street, Elizabeth, NJ 07201
908-436-4600 (main)

Hotel reservations:
Discounted hotel rates are available through Thursday, August 24, 2017.
Phone: 866-234-7535 or 908-436-4600 (mention "AA&MDSIF Patient Family Conference")
Online Hotel Reservations
Hotel self-parking is $7, and $16 overnight. The hotel provides an airport shuttle on request.
See other hotel information on the AA&MDSIF event page.
Conference registration:
Use the online Conference Registration Form to register for the conference.

For more information see the AA&MDSIF event page.

If you plan to attend this conference, post in this thread to let other attendees know to look for you!

After the conference, let us know what you thought of the event.
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