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#1
Fri Mar 8, 2013, 01:30 PM
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San Francisco Bay Area California MDS Support Group
 The San Francisco Bay Area MDS Support Group is open to all patients, family members, and caregivers in the Bay Area, California. The group is designed to provide mutual support and education to individuals with MDS who may feel a little less alone by meeting with others whose situations are similar to their own. Every other month the group has invited speakers, who cover a variety of topics such as current information about MDS, therapeutic approaches, clinical trials, nutrition, and many others. The meetings are open sessions in the intervening meetings. Meeting Schedule: First Friday of each monthLocation: Stanford Cancer CenterThe MDS Support Group is led by Lenn Fechter, RN, BSNFor more information about the San Francisco Bay Area MDS Support Group, email cancersupportivecare@stanfordmed.org or phone 650-725-9456. For more information about Communities of Hope support groups, see the Aplastic Anemia & MDS International Foundation's Communities of Hope page. 
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#2
Fri Mar 8, 2013, 01:37 PM
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Meetings in 2013
Friday January 4, 2013
Open SessionFriday February 1, 2013 Surviving with MDSFriday March 1, 2013 Open SessionFriday April 5, 2013 Transfusions, Treatments, Side Effects and More Part IIFriday May 3, 2013 Open SessionFriday June 7, 2013 MDS RoundtableFriday July 5, 2013 no meeting this monthFriday August 2, 2013 Daily Nurturing PracticesFriday September 6, 2013 Open SessionFriday October 4, 2013 Transitions and Palliative Care:Hospice of the ValleyFriday November 1, 2013 Open SessionFriday December 6, 2013 no meeting this month Last edited by Marrowforums : Mon Jul 22, 2013 at 06:38 PM. Reason: updated July-December
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#3
Mon Jul 22, 2013, 06:42 PM
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The 2013 schedule shown in the previous post has been updated with speakers and topics for August 2 and October 4. No meeting is planned for December.
For further information, for answers to questions, or to make suggestions, contact Lenn Fechter using the contact information in the first post above.
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#4
Wed Jan 29, 2014, 10:12 PM
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Meetings in 2014
Dates: The first Friday of each month
Time: 1:30pm - 3:00pm Friday February 7, 2014 What is this iron business all about?Friday March 7, 2014 Integrative Medicine for MDSFriday April 4, 2014 Open SessionFriday May 2, 2014 MDS RoundtableFriday June 6, 2014 MDS: What’s new about our disease?Friday July 4, 2014 Holiday; no meeting this monthFriday August 1, 2014 Daily nurturing practices and living with uncertaintyFriday September 5, 2014 Transfusions, Treatments, Side Effects and moreNo registration is necessary. Just drop in. Call 650-725-9456 to confirm the date of each meeting. Parking passes are provided for the Pasteur Visitor Garage. For more information email cancersupportivecare@stanfordmed.org or phone 650-725-9456.
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#6
Fri Nov 14, 2014, 07:03 PM
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Quote:
http://www.ucsfhealth.org/karin.gaensler
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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#7
Fri Nov 14, 2014, 07:46 PM
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AA doctor at UCSF
Yes, I saw Dr Gaensler's name on their site and have left a few phone messages with no response from her office. I was hoping someone had some personal experience with her or someone else. If not at UCSF, perhaps someone else in the Bay Area??
Thank you!
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#8
Sat Nov 15, 2014, 12:56 PM
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Hi Jeri,
Dr Jason Gotlib at Stanford is excellent. He does AA and MDS and is very knowledgable and dedicated. He saved my life. Interestingly...I also tried contacting UCSF in the beginning of my diagnosis and never had my phone call returned! I contacted Stanford and had an appointment for later that week.
__________________
58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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#10
Wed Jan 14, 2015, 01:54 AM
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2015 Meetings
Meetings are the first Friday of the month.
Meetings in 2015: For more information about Communities of Hope support groups, see the Aplastic Anemia & MDS International Foundation's Communities of Hope page.
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#11
Mon Feb 8, 2016, 12:11 AM
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2016 Meetings
Meetings are the first Friday of the month.
Meetings in 2016: For more information about Communities of Hope support groups, see the Aplastic Anemia & MDS International Foundation's Communities of Hope page.
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