Donor from over seas question?

[Heather8773]

Hi my husbands Drs are still being kinda vague (bc they are still unsure I guess) but they said they "think" his donor is from europ (I'm guessing Germany, my husbands family has a lot of German background) they were saying this will result in slightly higher risks. Anyone been told this?
Also they said they would be using fresh donor cells not frozen but that they would be flown in? Does that sound right?
I'm kinda wondering how they know they will be flown in but still unsure if the donor is over seas or in the U.S.A?
Any info is so appreciated!

[susanML]

Hi - I had a call from a lady that had her transplant 3 yrs ago where I am gonna have mine. She told me that her two sisters did not match and her donor came from Germany. A 19 yr old girl, and the cells were flown back here and transplanted to her. She has had a wonderful response - also I have heard alot of donor cells come from Europe because it is a law there to give DNA when they get their drivers license (?) I have not heard that the risks were higher - your doctor knows where they are coming from but may not have been up on all the details at the time. They may have had a couple of choices and he may not have been sure which one they choose at the time. Just speculation but I would try not to worry I would be happy. :-)

[sbk007]

Originally Posted by Heather8773

Hi my husbands Drs are still being kinda vague (bc they are still unsure I guess) but they said they "think" his donor is from europ (I'm guessing Germany, my husbands family has a lot of German background) they were saying this will result in slightly higher risks. Anyone been told this?
Also they said they would be using fresh donor cells not frozen but that they would be flown in? Does that sound right?
I'm kinda wondering how they know they will be flown in but still unsure if the donor is over seas or in the U.S.A?
Any info is so appreciated!

Heather, What kind of SCT is your husband having? You mentioned radiation in another post. Is it a "mini" transplant? Did you ask your doctors why there would be slightly higher risks from a European donor?
Thanks, Steve

[vickij]

I had my stem cell transplant on June 24th. I was told that my donor was European male, and that's all I'm allowed to know for 1 year. I wasn't told anything about more risks because he was from Europe. It is true that the cells are flown in fresh. Mine didn't get to the airport until after 11 p.m. and were brought straight to the hospital.
Will be Praying for you & Ronald.

[Heather8773]

Susan thank you. Yes he had 3 potential matches (blessed) and at the time we asked she said she would have to double chk.

Steve no it is a full on transplant. total body radiation and chemo. They are waiting until he zeros out (about 7 days) then they will transplant. They were wanting the donor to give bmt (marrow) not sct but haven't told us which the donor agreed to. Unfortunately I wasn't at the appointment where they talked about risks of over seas donor but from what my mother in law remembers it is that in Eroupe there was a time period that some infections were present. Maybe Neil knows?
Vicki so good to hear from you I have been thinking about u a lot! Well same appointment I missed they talked about flying in the donor cells. I thought ins payed to bring the donor over!? That's what I was told when I joined the be the match registry to be a donor. So idk why the cells are being flown over and still wondering can they really not need to be frozen?his drs prefer them fresh so I do also
Vicki how are you doing now?
Praying for y'all

[Heather8773]

Susan thank you. Yes he had 3 potential matches (blessed) and at the time we asked she said she would have to double chk.

Steve no it is a full on transplant. total body radiation and chemo. They are waiting until he zeros out (about 7 days) then they will transplant. They were wanting the donor to give bmt (marrow) not sct but haven't told us which the donor agreed to. Unfortunately I wasn't at the appointment where they talked about risks of over seas donor but from what my mother in law remembers it is that in Eroupe there was a time period that some infections were present. Maybe Neil knows?
Vicki so good to hear from you I have been thinking about u a lot! Well same appointment I missed they talked about flying in the donor cells. I thought ins payed to bring the donor over!? That's what I was told when I joined the be the match registry to be a donor. So idk why the cells are being flown over and still wondering can they really not need to be frozen?
Vicki how are you doing now?
Praying for y'all

[sstewart09]

Joe's donor is overseas, Poland. The only extra form he had to sign off on was the possibility of the donor being exposed to mad cow disease. It wasn't saying that she was, but I guess that's a risk. Our doc didn't discuss any additional risks with an overseas donor and didn't seem concerned about the meat issue either.

[Susan L]

How awesome is that - from Poland-wow it just amazes me where these donors come from - mostly I hear is from overseas. Thats really something. How is Joe doing since the transplant?

[sbk007]

I wonder what Archie Bunker would do if he needed a BMT and found out afterwards he was now Polish..

[sstewart09]

He's doing well, thanks for asking! Counts are pretty much back to normal, back to work on day 120ish, we are truly blessed. The weird thing is about his donor is that Joe is everything but Polish so it was a real surprise! Hope we can meet her one day

[Susan L]

So glad he is doing well - back to work at 130 - dang I am amazed at all the differences in people - And not polish - isnt that something!!! Best wishes to you both.

sbk007- That is funny - Archie would be fighting with himself every minute hahaha

Best to all -

[gramous]

Hello,

I come from Europa, and I can you assure that there are not more risk here than in the USA. A lot of infection's risk are check for blood and blood's products and the standard security for those products is very strict, for sure in Germany :-) (but also in the other countries in Europe: the law is common in Europe).
I wish you a lot of courage, friendly regards, béné

[sbk007]

Originally Posted by sstewart09

He's doing well, thanks for asking! Counts are pretty much back to normal, back to work on day 120ish, we are truly blessed. The weird thing is about his donor is that Joe is everything but Polish so it was a real surprise! Hope we can meet her one day

Back to work in 4 months wow!! Congrats!!

[Heather8773]

Originally Posted by sstewart09

Joe's donor is overseas, Poland. The only extra form he had to sign off on was the possibility of the donor being exposed to mad cow disease. It wasn't saying that she was, but I guess that's a risk. Our doc didn't discuss any additional risks with an overseas donor and didn't seem concerned about the meat issue either.

I think that sounds right bc his mom said it was not something that they thought anyone needed to be concerened about. And that it didn't mean his donor was exposed to anything.
I was just curious as I wasn't able to attend that visit and his mom was trying to fill me in on everything thx!
I'm so happy about Joe! I've been thinking about y'all!

[Heather8773]

Originally Posted by gramous

Hello,

I come from Europa, and I can you assure that there are not more risk here than in the USA. A lot of infection's risk are check for blood and blood's products and the standard security for those products is very strict, for sure in Germany :-) (but also in the other countries in Europe: the law is common in Europe).
I wish you a lot of courage, friendly regards, béné

Bene thank you I'm not certain which country yet but I'm just guessing Germany. Im really excited and thankful they found a donor for him and that there is an international registry available!! I have been just curious about everyone's experience if they were told any of the things I posted.
I have been thinking a lot about how so manny donor come from Europe and been inspired by it. I wonder how many register here? (just literally curious)

[sbk007]

From the bethematch webpage:

A patient's doctor can search our Be The Match to Registry and other registries worldwide to access more than 20.5 million donors and more than 590,000 cord blood units.

There may be other registries...Hope that helps.

[Jill2008]

My donor was a 48 year-old male from Germany. Unfortunately, I came down with a respiratory illness the day I was to be admitted and the stem cells had to be frozen because my donor wasn't able to go through the process again at that time. I was 100% donor following transplant though. I relapsed eight months later for whatever reason they do not know. I was able to contact my donor two years following transplant and we still keep in touch via e-mail. I thanked him for giving me another chance at life and told him how much it meant to me. He said if I was able to have another transplant, he would donate again. The guidelines have changed though and the maximum age for donors is 40. Many donors are European. From what I understand it is a very big deal over there. Best wishes!

[Heather8773]

Awe Jill thx for sharing. All donors from all country's are a blessing. I hope that the message of donating can save lives is spread to the country's w low donor numbers. I have been told your donor probably matches your background so if there are low donor numbers w a specific group that person in need will be less likely to find a match. My friends co worker has been waiting 8 yrs bc (she says) of that reason.
Im happy y'all still keep in touch. We re looking forward to that.
I hope that things start to improve again for you!
God bless

[Heather8773]

Ps.. They were not frozen I think I got someone to accidentally admit to Germany and it was Marrow (read back)

[Cheryl C]

Jill - I'm interested in you saying the maximum age for donating marrow was 40. When I was programmed for a transplant here in Australia one of my brothers turned out to be compatible and was accepted as a donor. He was 65 at the time.

[Hopeful]

Originally Posted by Cheryl C

Jill - I'm interested in you saying the maximum age for donating marrow was 40. When I was programmed for a transplant here in Australia one of my brothers turned out to be compatible and was accepted as a donor. He was 65 at the time.

Jill may have been referring to the recent change in the US where you can only join the reigstry for free if you are between 18 and 44 years old. If you are 45-60, you can still join the registry but will have to pay ~$100. I think this is because doctors prefer younger donors, and there is cost involved with putting people on the donor list.

[Cheryl C]

Oh, OK.