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#1
Thu Apr 12, 2012, 12:52 PM
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Need a little help
My husband is going to go the Vidaza & Revlimid trial together....there is a 25% rate it might work....He was on Vidaza for 9 months and was 5 months trans free, and he did really well...then stopped working....only treatment for the last 3 months have been red blood cells....plts around 40-44...LKC 5.3...Neuts 3.6....blasts under 2%....Exjade 1000...per day
Any thoughts please....needless to say we are nervous.... Thanks 
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#2
Fri Apr 13, 2012, 10:38 AM
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It's understandable that you're nervous. Vidaza worked well for me but the whole time I worried about what would happen when it quit working. I don't know anything about the revlimid combo trial. Like your husband, I was initially opposed to having a SCT/BMT (a very scary procedure) but changed my mind when I realized how fast the time was flying by. It has worked out well for me thus far, 16-1/2 months later. I wish you the best.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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#3
Sat Apr 14, 2012, 11:02 AM
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Vidaza and Revlimid
I started Vidaza in January and Revlimid in March. Apprentily, Revlimid has been know to work on a certern chromozone, which is the one of mine. Revlimid is suppose to raise you HGB, but lowers white and platletts. I will ffind out this week. I have a BMB scheduled and well as labs and an appt. with Dr. Lancet, who was on the trial committee.
Hope this helped. God Bless Anneg
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