Home         Forums  

Go Back   Marrowforums > Treatments > Clinical Trials
Register FAQ Search Today's Posts Mark Forums Read

Clinical Trials Considering or participating in research studies

Reply
 
Thread Tools Search this Thread
  #1  
Old Sun Sep 24, 2006, 02:39 PM
seniorrico seniorrico is offline
Member
 
Join Date: Sep 2006
Posts: 50
Clinical Trial Fibrogen 2216

Last summer I participated in a clinical trial at UMass on Fibrogens 2216 for 5 weeks. I did not experience a positive response with this drug but looking back maybe I should have stayed on it longer. Anyone participate in a clinical trial with this drug or any others for treatment of MDS? What were the results.
Warren Rich
RAEB dx Feb. 2006
Reply With Quote
  #2  
Old Tue Dec 26, 2006, 06:57 AM
judyjudyjudy judyjudyjudy is offline
Member
 
Join Date: Aug 2006
Location: Connecticut
Posts: 10
Fibrogen trial

My husband, David is currently on such a trial with Dr. Raza at UMASS. He's on day 87 of a 113 day trial. He's at the maximum dose (2500 mg), feels awful, nausea, loss of appetite, sharp stomach cramps, and even greater fatigue than he normally has--but he's sticking it out, because whatever results there have been seem to come after the trial is over. He is tansfusion-dependent, every 2 weeks, that hasn't changed--yet.
Judy
Reply With Quote
  #3  
Old Sun Jan 28, 2007, 12:48 PM
seniorrico seniorrico is offline
Member
 
Join Date: Sep 2006
Posts: 50
Fg2216

Your Dad's respnse sounds like mine. When I went to the higher does with Dr Raza I felt terrible so I opted out but my trans fusion frequency never got a whole lot better. I was 4-5 weeks then all of a sudden I went to two weeks. So I went to a Dr Voorhees at UNC Chapel Hill, NC and he did a bone biopsy and then put me on Dacogen. My results to date on Dacogen have been fantastic. If you want call me at 910-791-6745 and I will fill you in on the details.
Warren Rich
Wilmington, NC
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
New Promacta (Eltrombopag) Clinical Trial at NIH Sally C Clinical Trials 73 Sun Dec 30, 2018 05:52 AM
Learning About Clinical Trials and Finding Clinical Trials Marrowforums Clinical Trials 0 Wed Jun 3, 2015 05:10 PM
Curcumin/Gingerol Clinical Trial for MDS Janice M. Clinical Trials 13 Mon May 13, 2013 10:03 AM
Thank you to clinical trial participants! Neil Cuadra Clinical Trials 7 Sat Jan 12, 2013 03:49 PM
Clinical Trial or continue Vidaza??? Al's Wife Drugs and Drug Treatments 17 Mon Jan 23, 2012 03:45 PM


All times are GMT -4. The time now is 05:50 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org