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#1
Mon Oct 14, 2013, 07:21 AM
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Magic Bob
Hi all,
Just wanted to let you know that my dad passed away yesterday, October 13th (my sister's birthday). This past week has been a real struggle. He passed away surrounded by all his family, which was a blessing. He fought a long hard battle and was a brave soldier throughout. He is finally at peace and looked very peaceful in the end. Thank you for all the comfort you brought to him. He spent countless hours reading everyone's posts. He felt like he find some real friends in all of you as you could understand exactly what he was going through. Thoughts and prayers are with you all. Love from Magic Bob's family 
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#2
Mon Oct 14, 2013, 07:37 AM
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Quote:
Dear MagicBob's family, This is so sad to hear. Your dad was so very special to my husband and I. He helped my husband, Dean, not feel so alone and scared. Dean was too weak to get on the computer in his final weeks, but he constantly ask me if I heard from MagicBob and wanted to know how he was doing. Your dad said that both he and Dean were going to have a wonderful 77th birthday celebration, their birthdays were one day apart. They will now have a special party in heaven together! Sending you, your mom, and your family my love, hugs, faith, hope and prayers, Patti Darby
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Dean,age 76, dx MDS, RAEB-2, 17% blasts, June 2012 - May 2013 - Dacogen with Neupogen and transfusions as needed. End of May 2013 Dacogen stopped working. BMB July 2013 shows RAEB-2 and severe Myelofibrosis. Passed away September 30, 2013
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#3
Mon Oct 14, 2013, 08:24 AM
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I am so sorry to hear this news ... my thoughts are with you, the family. A battle bravely fought is over. Peace.
Darice
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hubby 73, dx NHL 2001, CNS involvement. SCT (auto) 5/08 [dx UTUC renal pelvis, 2010/surgeries/MMC], MANY recurrences, chemos, surgeries, rad. dx t-MDS 3/11: IPSS 1.5 (Int-2); MDA 11, RCMD trilineage, inc. Fe, ring sideroblasts, 7q del/mono 7 (51.5%), 46,XY,t(6,17)(p22;q25)[4]/45,XY,-7[4]/46,XY[12].
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#4
Mon Oct 14, 2013, 08:26 AM
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MagicBob
Dear Magic Bob's family,
How sad that Bob lost the fight against the disease! Good that you all could be there for him. May he rest in peace. Warm regards Birgitta-A
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#5
Mon Oct 14, 2013, 08:28 AM
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My thoughts and prayers are with you and your family. Magic Bob was an inspiration to us all. It was amazing that he comforted so many people on here while he was going through his on unbelievable struggles.
May he rest in peace. Deb
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#6
Mon Oct 14, 2013, 12:22 PM
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Blessings and Prayers to Bob and his family, may he rest in peace.
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10  ; 5.5% blasts down to 3%, now 1% (post BMT)
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#9
Mon Oct 14, 2013, 04:34 PM
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I am so sorry for your loss. Magic Bob was an inspiration and source of comfort to many dealing with MDS. May the knowledge that he is now at peace comfort your family in the weeks to come.
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Sue, age 72; Dx 6/2010 MDS Int-2. Revlimid unsuccessful, began Aranesp 10/2010; additionally Dx PNH 2/2011, Soliris added 3/2011. ATG 5/2011, Cyclosporine 5/2011. Nplate 10/2011 to 10/2012 . Exjade began 12/2013 due to high ferritin level, discontinued 3/2014 because of increase in creatinine.
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#11
Mon Oct 14, 2013, 06:29 PM
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I'm so sorry for your loss. My prayers and thoughts are with you all.
Rachael
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Diagnosed MDS Del 5q October 2007, blood transfusions 2010, commenced Revlimid 2010. Transfusion independent.
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#12
Mon Oct 14, 2013, 07:37 PM
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Thank you to Magic Bob's family for letting us know what happened. My sympathies for your loss of such a nice man. He must have been very well loved by all of you.
Magic Bob was a great guy, as everybody here already knows. He cared about the rest of us and we cared about him. I wish the last 2 years had been easier for him, but he always kept his and our spirits up. Thank you for being our friend, Magic Bob.
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#13
Mon Oct 14, 2013, 08:05 PM
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Thank you for letting us know. It must have been difficult for you.
Rest in peace Magicbob.
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy. FISH reported normal cytogenetics but gene testing showed Xq 8.21 mutation Xq19.36 mutation Xq21.40. mutation 1p36. Mutation 15q11.2 deletion
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#14
Tue Oct 15, 2013, 04:45 AM
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It's been a sad couple of weeks on this forum hasn't it. My deepest sympathy for the loss of Bob, another inspiration to all of us. Prayers and thoughts for you his family.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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#16
Tue Oct 15, 2013, 10:58 AM
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To reach out to comfort others when you are dying yourself is the trait of a great man. I am sorry that you have lost him. tytd
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possible low to int-1 MDS with predominant thrombocytopenia, mild anemia, dx 7/08, in watch and wait mode
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#18
Tue Oct 15, 2013, 01:39 PM
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I echo Cheryl C.'s words - it has been an especially difficult time for our forum members these past few weeks. We've lost a lot of good people who have been instrumental in making this forum a great source of information, inspiring stories of courage, and, yes, even hope.
May they all rest in peace and know that we are all better people because we "knew" them. Deepest sympathies to Magic Bob's family as you focus on the days ahead and I know he left y'all with wonderful memories. God bless,
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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