| Home Forums |
|
#1
Sat Feb 1, 2014, 12:31 AM
|
|||
|
|||
One year Post Mini MUD SCT & All is Normal
Hi, I just completed my one year check up with the Fred Hutchinson Long Term Followup team and am so happy to report my BMB and lab results are normal. The SAA is definitely gone, I have 100% donor chimerism, 30-40% cellularity & normal cells & maturation in all 3 lines. So my mini MUD SCT worked. Time to celebrate!!
I'm still on a small dose of Cyclosporine (50mg 2xday) & have stopped the taper for now because I developed some moderate oral GVHD 2 weeks ago, but its such a low dose & hopefully I can restart the taper soon. (I'm also still doing monthly phlebotomies). 15 months ago, when I had to make a decision about moving forward with my MUD transplant after the Horse ATG failed to work for me, I really struggled with my decision. I had to switch off my fears and move past my worry about the high risks associated with my age. I wanted to enter my transplant confident and with positive energy. Today I feel very thankful that I was fortunate to have a perfect donor, that my husband was an amazing caregiver, and I had an excellent medical team. I will never take any of these gifts for granted, nor all the research which has made it possible to manage AA so much more successfully than in the past. For those struggling with AA, hang in there, be your own advocate & if you're able, find a medical team who knows how to manage & treat this crazy disease. Cheers, Dena
__________________
Dena Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great 
|
|
#3
Sat Feb 1, 2014, 12:51 PM
|
|||
|
|||
|
Dena,
Congrats on the great results!! May your GVHD be a distant memory soon... Good luck, and God Bless...
__________________
Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10  ; 5.5% blasts down to 3%, now 1% (post BMT)
|
|
#4
Sun Feb 2, 2014, 01:09 AM
|
|||
|
|||
|
So happy to hear your levels are normal! Congrats!
__________________
Summer, 32; diagnosed with SAA May 2013; BMT June 7, 2013; off meds, no signs of GVHD; doing great, praise the Lord!
|
|
#5
Mon Feb 3, 2014, 01:34 AM
|
|||
|
|||
|
Dena congrats! Such great news!
__________________
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium. 10/10 MUD 10/10/13 Now no PNH or AA. Mixed Chimerisim
|
|
#8
Mon Feb 3, 2014, 05:46 PM
|
|||
|
|||
|
Congratulations and Happy Rebirthday!
__________________
Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
|
|
#9
Tue Feb 4, 2014, 02:50 AM
|
|||
|
|||
|
Thank you everyone. I feel so blessed to have found Marrowforums. You all have helped me so much throughout this crazy journey we all share.
__________________
Dena Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
|
 |
| Thread Tools | Search this Thread |
|
|
Similar Threads
|
||||
| Thread | Thread Starter | Forum | Replies | Last Post |
| Is it normal to feel so bad 2 yrs after SCT? | vickij | MDS | 7 | Fri Jul 31, 2015 07:35 PM |
| +33 days post MUD transplant(10/10)- WBC and Hb low | pdiitdelhi0204 | Transplants | 4 | Thu Aug 7, 2014 12:40 AM |
| + 13 days post transplant( MUD transplant 10/10 match) | pdiitdelhi0204 | Transplants | 4 | Thu Jul 24, 2014 07:38 PM |
| How do I find out clinical trials for persistent MDS post MUD? | Wife of Diver Down | Clinical Trials | 1 | Fri Apr 4, 2014 12:22 AM |
