Home         Forums  

Go Back   Marrowforums > Community > Tell Your Story
Register FAQ Search Today's Posts Mark Forums Read

Tell Your Story Say hello or share your experiences

Reply
 
Thread Tools Search this Thread
  #1  
Old Fri Jan 18, 2008, 01:07 PM
Dick S Dick S is offline
Member
 
Join Date: Jan 2008
Location: Florida
Posts: 189
New MDS, new to forum.

Hi y'all. I am new to this forum, 73 yrs old, was referred by the AA&MDS Foundation.
I was diagnosed with MDS in Feb. 2006 and get treatment from the VA. My last CBC showed hematocrit at 33.5 and hg at 10.8, but at the present time the hematoligist has NOT recommended any treatment. Doc says he wants the numbers lower before starting anything. Hasn't even done a bone marrow biopsy, but sure he "knows" what it is. I can't go on Procrit because of other heart conditions. Trust me, I am suffering and some days don't even have the energy to tie my shoes. I am not too good at words to expalin what I am going through, but I am sure you guys know. Today I called the VA and asked if I could get a referral to Moffitt as I only have VA and Medicare coverage.
Thanks in advance for any help and advice.
Dick S
__________________
Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
Reply With Quote
  #2  
Old Fri Jan 18, 2008, 03:29 PM
Joan Joan is offline
Member
 
Join Date: Jan 2008
Location: Ames, Iowa
Posts: 35
Dick;

I can believe you don't have a lot of energy some days with hgb at 10.8 My husband's as been running below 10, now about 8.7 for several months. He has good days and bad days and some days more energy. He is 76 but even on bad days tries to get out and walk every day. Amazed doc hasn't done bone marrow biopsy for definite diagnosis.

Hang in there.

Joan
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
MDS - VA assigns diagnostic code 7725 Tommy Daniels MDS 4 Sun Jan 22, 2017 03:51 PM
MDS Patient Forum in Atlanta, GA, Nov 13-14 knstone News and Events 0 Tue Oct 7, 2008 02:29 PM
New to MDS and forum. Ger Tell Your Story 3 Tue Sep 25, 2007 10:25 PM
MDS Patient Forum in Dallas Jan 22-07 george peveto News and Events 1 Tue Dec 12, 2006 06:32 PM


All times are GMT -4. The time now is 10:09 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org