Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Thread Tools Search this Thread
Old Mon Sep 19, 2016, 01:24 PM
Ofassioro Ofassioro is offline
Join Date: Sep 2016
Location: Asti, Italy
Posts: 1
MDS and diet?

Hello all,
I just recently joined this website after attending the conference in San Diego on September 17, 2016. This is a FABULOUS website and I already know I'll be visiting it many times to come. I am the daughter of a patient with MDS who lives in Europe and I'm trying my best to help from here although my help is almost no help. Although I'm all in for standard medicine, ( my husband works in the medical field) I was wondering if anyone knows of a good nutritional book for people with blood diseases. Talking to doctors, they just suggest to eat what the patient want, but I believe the fuel we put in our body must make the difference in how our "machine" runs. I'm not looking for specific recipes, rather guidelines together with foods to add and to avoid in a diet.
Any suggestions are welcome.
Reply With Quote
Old Mon Sep 19, 2016, 09:25 PM
rar rar is offline
Join Date: Mar 2014
Location: colorado
Posts: 215
What is a Neutropenic Diet?
A neutropenic (nu-tro-PEE-nik) diet is for people with weakened immune systems. This diet helps protect them from bacteria and other harmful organisms found in some food and drinks. If your immune system is not working well, your body may have a hard time protecting itself from these bacteria. Cooking foods (like beef, chicken, fish, and eggs) completely makes sure that all bacteria are destroyed.

Who Needs to Follow a Neutropenic Diet?
Doctors often recommend this diet before and after certain types of chemotherapy and other cancer treatments. A blood test called an absolute neutrophil count (ANC) can help determine the body’s ability to fight off infection. Many cancer patients have this blood test done routinely. When the ANC is less than 500 cells/mm3, the patient is often instructed to follow a neutropenic diet. This diet should be followed until the doctor tells the patient to resume his or her regular diet.

Patients undergoing autologous stem cell transplants typically follow this diet during the pre-transplant chemotherapy and for the first 3 or more months after transplant. Patients undergoing allogeneic stem cell transplants typically follow this diet during the pre-transplant chemotherapy and continue on it until they no longer take immunosuppressive drugs. The transplant team will tell the patient how long to follow this diet.

People who have had an organ transplant or who are being treated for HIV/AIDS also may need to follow this diet. If you are not sure if you should follow this diet, check with your doctor, nurse, or dietitian.

General Tips
The following pages list the foods you should choose when you are on a neutropenic diet. Foods you should avoid are also listed. Please check with your doctor, nurse, or dietitian if you have questions about the diet or safe food preparation. Some general tips include:

Avoid all fresh fruits and vegetables, including all fresh garnishes. Cooked vegetables, canned fruits, and juices are fine.
Avoid raw or rare-cooked meat, fish, and eggs. Meat should be cooked to the “well- done” stage. All eggs should be thoroughly cooked (no runny yolks).
Avoid salad bars, fruit bars, and deli counters. Buy vacuum-packed lunch meats rather than freshly sliced meats.
Avoid raw nuts. You may eat baked products with these ingredients.
Make sure all of the dairy products you eat are pasteurized.
Avoid yogurt and yogurt products with live and active cultures.
Be safe in the way you handle foods. Wash your hands before handling food. Wash all surfaces, cutting boards and cutting utensils thoroughly. Keep hot food hot and cold food cold. (See the UPMC patient education sheet Food Safety: Preventing Foodborne Illness for more information.)
At home, you may use tap water. If you choose to use bottled water, be sure it is labeled as follows:
Reverse osmosis or
Distillation or
filtered through an absolute1 micron or smaller filter
Well water is OK if it is boiled for at least 1 minute.

see http://www.upmc.com/patients-visitor...enic-diet.aspx for more details
Reply With Quote
Old Mon Sep 19, 2016, 10:22 PM
Cheryl C Cheryl C is offline
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 842
That's comprehensive info from RAR. Just one more hint - avoid foods with added sugar as much as possible. Sugar is a real enemy when it comes to your immune system. Medihoney is good as it's antibacterial - see http://www.express.co.uk/life-style/...-survive-chemo
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Holistic treatment of MDS seniorrico Alternative Treatments 32 Mon Oct 26, 2020 03:22 PM
how long can you live with mds dee MDS 15 Wed Aug 14, 2013 10:04 PM
MDS cured by a macrobiotic diet? S001 Alternative Treatments 26 Fri Jun 28, 2013 10:25 PM
Macrobiotic Diet cheri Alternative Treatments 1 Tue Nov 9, 2010 01:56 AM

All times are GMT -4. The time now is 01:56 AM.

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2021, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org