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  #1  
Old Sun Dec 9, 2012, 02:11 PM
Cam Cam is offline
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Join Date: Oct 2012
Location: Jacksonville, Florida
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Transplant plus 3
I am 3 days post transplant. My numbers have not quite bottomed out but they say I am doing good. I am a little stir crazy being stuck in the room, as I can not leave until my ANC is above.5.. I am in good spirits and know that this too shall pass and my hope is to be home for Christmas. It just all depends on how long engraftment takes. They keep telling me that I will feel worse but I hope that does not happen...
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Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
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  #2  
Old Sun Dec 9, 2012, 03:18 PM
Neil Cuadra Neil Cuadra is offline
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Cam,

Any problems eating and drinking? For some patients it gets rough (just ask my wife) and I hope you avoid that.

What are you doing to distract yourself and help the time pass?
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  #3  
Old Sun Dec 9, 2012, 06:05 PM
Cam Cam is offline
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Location: Jacksonville, Florida
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I have had bouts of nausea, but the meds are keeping it in under control. I also try to eat smaller meals but when I am full I stop. I can stand to lose a few pounds so it is working out.. I also have a drawer of high calorie snacks like a little debbie with 350 calories in three bites. They have this three step mouth wash I have to do four times a day to ward off mouth sores. As far as stir crazy, I have been reading, watching movies, and I am teaching an online course which is coming to a close soon... I do feel I could never do prison, I have an huge hospital room but even I have my moments when I am alone and the walls seem to crawl in.
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Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
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  #4  
Old Sun Dec 9, 2012, 06:15 PM
ssdavi71416 ssdavi71416 is offline
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Keep up the good spirits. I found a box set of CDs of the riffleman and watch them for a while during ATG treatment. I hope you continue to feel OK. Happy Holidays!
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Scott 51 yr SAA 3/2012. PTL 7, ANC 200. ATG finished 4/9/2012. 2/4/2013. TX independent:; PTL 133, ANC 3300, Hgb 13.4.
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  #5  
Old Wed Dec 12, 2012, 08:32 PM
Lori Patrick Lori Patrick is offline
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GREAT Cam! Hey I gained weight during my treatments (still have not lost it) by eating milk shakes. Only when I was going home did I know that they were made with high calorie ice cream and boosts and/or ensures! I did not get the mouth sores and hope that you do not either. Keep hanging in there!!
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Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor! cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
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  #6  
Old Thu Dec 13, 2012, 08:22 AM
squirrellypoo squirrellypoo is offline
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Quote:
Originally Posted by Lori Patrick View Post
GREAT Cam! Hey I gained weight during my treatments (still have not lost it)
No way, me too! I gained weight pre-transplant because the doctors told me "everyone loses a ton of weight" but then I didn't get any nausea so I kept right on eating! It took me a good year to work off the excess...

Hope you're still doing well, Cam. Updating this forum is a great way to stave off boredom, too.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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  #7  
Old Fri Dec 14, 2012, 12:05 AM
kwaidz kwaidz is offline
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Great news Cam. Glad you are doing well.
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K, daughter and caregiver of Em - age 64 dx Oct 2012 with RAEB MDS Intermediate risk. BMT on 3/22/13.
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  #8  
Old Mon Dec 17, 2012, 01:06 PM
mausmish mausmish is offline
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Good to hear from you, Cam. It sounds like you're doing great!
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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