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Transplants Bone marrow and stem cell transplantation

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  #1  
Old Sat Jan 5, 2013, 09:06 PM
Cam Cam is offline
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Join Date: Oct 2012
Location: Jacksonville, Florida
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Day 28 new development..

Well on Day 28 I have either developed GVHD or an adverse reaction to Bactrum (probably misspelled)... They tested it and that was what the dermatology report said.. I thought that was sort of funny.. Flip a coin it could be either... So now I am taking a different drug and a zpack of steroids to cover both possibilities. The Dr. gave me a speech about there being up's and downs and I thought if this itchy rash on my torso is as the worst it gets I am great with that.. On day 31 they are taking out my central line. My last blood count had my Hgbl at 12.4 and my ANC at 4.2 so I am still saying awesome...
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Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
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Old Sun Jan 6, 2013, 11:54 AM
Neil Cuadra Neil Cuadra is offline
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Cam,

I hope the rash as a reaction to the bactrim, since switching antibiotics may be all it takes. Nobody wants GVHD of the skin, but ironically GVHD is one of the signs that a transplant is working, because it shows that your new immune system is recognizing what it considers foreign invaders -- your own body!

Let's hope this is only a small dip on the rollercoaster ride.
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Old Sun Jan 6, 2013, 11:58 AM
squirrellypoo squirrellypoo is offline
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Yeah, don't get too concerned even if it is GVHD - acute GVHD right after transplant is pretty easy to fix. I had some awful hives about a month after transplant that was confirmed as GVHD, and that was cleared up after a week or two with topical steroids. To date, that's still the only GVHD I've ever had, so don't take this as any indication you're going to be stuck with it forever!
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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Old Sun Jan 6, 2013, 05:50 PM
dpmeeks dpmeeks is offline
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Cam congrats on you doing so well, I hope mine goes that smooth
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Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
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  #5  
Old Sun Jan 6, 2013, 09:32 PM
Cam Cam is offline
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Thanks everyone. It kind of itches but if this is the worst I get then I am ok with that... As long as they do not put me back in isolation, I hated that when I could not leave the room for 18 days....
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Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
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