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Old Sun Feb 7, 2016, 10:33 PM
Marrowforums Marrowforums is offline
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One-day Patient Conference in Cincinnati, Ohio, April 30, 2016

A free one-day patient conference will be held in Cincinnati, OH on Saturday, April 30, 2016. The conference, hosted by the Aplastic Anemia & MDS International Foundation (AA&MDSIF), is one of seven one-day patient conferences in 2016.

The conference is for AA, MDS, and PNH patients and their families, as well as medical professionals who care for these patients.

The conference will include parallel (simultaneous) sessions on AA, MDS, and PNH, sessions on transplants, clinical trials, health insurance, and decision-making, as well as professionally-facilitated support sessions with your peers.

There will also be a program for kids, at this conference city only. In the morning there will be an Interactive Kids Program. In the afternoon there will be Q&A sessions and an Ice Cream Social.

Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight. There will a Friday Night Social the evening before the conference.

Conference Program

Come hear the latest information about diagnosis, treatment, and medical research from leading experts, including these physicians:
  • Dr. Hetty Carraway, Cleveland Clinic
  • Dr. Corey Cutler, Dana-Farber Cancer Institute
  • Dr. Jack Goldberg, University of Pennsylvania
  • Dr. Jaroslaw Maciejewski, Cleveland Clinic
  • Dr. Kasiani Myers, Cincinnati Children's Hospital
  • Dr. Mikkael Sekeres, Cleveland Clinic
Patients and family members will also be able to
  • meet medical experts face-to-face
  • hear about the latest treatments and medical research
  • learn skills for managing life with a bone marrow failure disease
  • have your questions answered
  • learn how to be your own advocate for the best care
  • get to know other patients and family members like yourselves
  • attend professionally-facilitated support sessions
A special lunch program will let conference attendees meet and talk, with an emphasis on ways to stand up for your health.


AA&MDSIF Patient and Family Conference: Living with Aplastic Anemia, MDS, or PNH

When:
Saturday, April 30, 2016, 8:30am to 4:30pm
Check-in begins at 7:30am.
Where:
DoubleTree by Hilton Cincinatti Airport Hotel (Google map)
2826 Terminal Drive, Hebron, KY 41048
859-371-6166 (main)

Hotel reservations:
Discounted hotel rates are available through Thursday April 7, 2016.
Phone: 855-610-8733 or 859-371-6166 (mention "AA&MDSIF Patient Family Conference")
Online Hotel Reservations
Hotel parking is free. A free airport shuttle is available.
See other hotel information on the AA&MDSIF event page.
Conference registration:
Use the online Conference Registration Form to register for the conference.
No registration deadline has been set.

For more information see the AA&MDSIF event page.

If you plan to attend this conference, post in this thread to let other attendees know to look for you!

After the conference, let us know what you thought of the event.
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Old Tue Apr 12, 2016, 01:19 PM
Marrowforums Marrowforums is offline
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Live-Streamed Sessions

Three sessions at the Cincinnati conference will be live-streamed as webinars. They will also be available for later viewing.

MDS: Current Thinking on the Disease, Diagnosis, and Treatment
Saturday April 30, 2016,9:00am EDT

Dr. Hetty Carraway, Cleveland Clinic
Advances in MDS Treatment: What's on the Horizon
Saturday April 30, 2016, 10:45am EDT

Dr. Mikkael Sekeres, Cleveland Clinic
The Value of Sharing Wishes: Advance Care Planning & Decision Making
Saturday April 30, 2016, 1:30pm EDT

Barbara Rose, RN, MPH, Hospice of Cincinnati
Click the links to register for any of these webinars.
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