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General Health Issues Diet and appetite, sleep and fatigue, pain management, exercise, etc.

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Old Thu Mar 14, 2013, 03:23 PM
jayc jayc is offline
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Question bone and joint pain with mds?

dx with mds 2yrs ago. had success with revlimid for 18mos before low wbc, ans .4. off now for 2mo and 1bt. ihave mod to severe bone pain in upper back both arms and shoulders for last 3 months. anyone else experiencing bone pain ?
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Old Thu Mar 14, 2013, 05:56 PM
Neil Cuadra Neil Cuadra is offline
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jayc,

The subject of bone pain, from the disease or from a treatment, has come up in the forums in many different contexts. You might want to review some of these threads where bone pain has been discussed:
ATG at Moffitt

low back pain

Without Diagnosis and early stages (hypoplastic MDS or AA)

severe bone pain!

Need some input.....

Has anyone experienced the sharp bone or joint pains after more than 6 month BMT?

AML and pain
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Old Thu Mar 14, 2013, 09:22 PM
jayc jayc is offline
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Talking thank you

neil thanks for your responce -i'm going to checks those sites
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Old Fri Mar 15, 2013, 05:50 AM
Cheryl C Cheryl C is offline
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I'm really interested to read your post because I frequently have shoulder pain. I have blamed it on computer work, but have often wondered if it's exacerbated by the MDS.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. On watch and wait since Feb 2012. IVIg 5-weekly. BMB Feb 2014 - no blast transformation. 2018 still stable.
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