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#1
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Rigors at night
My husband has been having rigors (shaking) at night with no fever. He is not cold. His blood work is the same as usual (low WBC, platelets and slightly low hgb ).
He sees the doctor this week, but not the bone marrow specialist until Feb. Has anyone else experienced this?
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Husband (61) dx RAEB1 Apr 2015 after long term bad CBCs (first discovered Apr 2008 after an unknown infection had him hospitalized), currently on watch & wait with monthly bloodwork. Myeloid Gene Panel testing done Aug 2017, showed nothing worrisome. CEBPA mutation |
#2
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I did a search for rigors and there are diseases that can cause that. Maybe research it on the internet.
All the best, Sally |
#3
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I was just asking if anyone else has experience with it.
I did google it, but I also am pretty confident it is a symptom of his MDS, because he had it the day he was hospitalized and diagnosed, just wanted to know if anyone else has had this symptom and what it was (with regards to the MDS itself) may be causing it. I think I might misunderstand what this forum is for.
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Husband (61) dx RAEB1 Apr 2015 after long term bad CBCs (first discovered Apr 2008 after an unknown infection had him hospitalized), currently on watch & wait with monthly bloodwork. Myeloid Gene Panel testing done Aug 2017, showed nothing worrisome. CEBPA mutation |
#4
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Being of a curious nature I did a search on rigors and thought I would reply to your post. Your question to the forum - in my opinion - is exactly what the forum is for. I just thought I would share with you what I found out.
My husband did get the rigors when he was receiving Campath back in 2009 but I didn't think that would apply to your husband. All the best, Sally |
#5
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There is a thread I believe right now on the MDS foundation website message board talking about shaking at night, there are others with this symptom, you may want to check out that message board. www.mds-foundation.org
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MDS-RARS diagnosed with BMB June 2017, wait and watch for now as blood counts have increased from levels that prompted BMB |
#6
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Rigors!
Quote:
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Kathleen, adoring wife of Ed 67 yo, Dx April 2017 MDS RAEB2, no chromosomal mutations, as of August 2017 only supplement therapy, living and loving each day. October 2018 started Decitabine, "exceptional response", MUD HSCT May 7, 2019. |
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