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Pediatrics Treatment for juvenile patients

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Old Mon Mar 19, 2007, 12:18 AM
Wendy Beltrami Wendy Beltrami is offline
Join Date: Aug 2006
Posts: 269
Danazol, cyclosporine and next... zenapax for Grant

Thought I'd start a new thread..

Grant is going to start zenapax (daclizumab) as soon as we can get it set up. It will be a 30 minute infusion through a regular IV. 6 treatments total. One every 2 weeks. If after 3 or 4 treatments, nothing is happening, then we will stop and move on to the next treatment on the list.

Danazol isn't doing much for his counts, YET. We saw a jump in his retic count last time but are reserving judgement until the next set of counts to see if it is continuing.

Wendy/mom to Grant
age 15
dx 12/4/98
transfusion dependent
taking cyclo, danazol and Exjade now
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Old Wed Mar 21, 2007, 03:54 PM
Sherri Sherri is offline
Join Date: Mar 2006
Location: Cleveland, Ohio
Posts: 22
Good to hear!

Hi Wendy-

Glad to hear from you . I've been thinking about Grant and wondering how he is- please let us know how his counts go.

Mom to Annalyse, 6 years old
SAA 8/05 PNH 9/05 ATG 9/05 w/Cyclo
Currently in partial remission
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