Is night thirst typical of MDS?

[Cheryl C]

Hi MDS friends

Just wondering ... since having MDS I find I get terribly thirsty during the night, although I drink plenty of water during the day. I end up drinking more water and of course that means I need to visit the bathroom when I should be sleeping. I don't have diabetes.

I'd be interested to know if this is an MDS characteristic??

[estelle]

It could be or it could be the medication. My father feels the same. I read the instruction of his medication which also mention this. one instruction even says this medication might lead to dehydrate, so keep taking enough fluid. His recently coughing might be caused this. He said he coughed because of itch at throat and sometimes drinking water would help. but not every time.

[Neil Cuadra]

Cheryl,

I've never heard of thirst being a direct symptom of MDS. Estelle is right that a medicine could be having this side effect. You could try avoiding salty or spicy dinners, soy sauce, or salty snacks in the evening, in case they are making you thirstier. From your description it doesn't sound like a serious problem, but you can ask your doctor about other possibilities.

[Cheryl C]

Thank you. It's one I will add to the list for my next specialist visit.

[milliken2]

Cheryl;
I am not sure if it is a side effect of the MDS - but since you have mentioned it - Earl has certainly been more thirsty at night. When he goes to bed, he has a full 20 ounce bottle of water, and often he will wake me and ask me to get him some more. Of course, he is on Lasix - a diuretic - but he takes that in the early AM - and always has plenty of fluids after that during the day. I will certainly ask the Doc the next time I see him.
Good Luck to You.

Beth

[HughHC]

Cheryl

I have always had a thirst. As a young adult my family suspected diabetes but that has never been the case. I still have a thirst since being diagnosed with MDS but the thirst is no more pronounced.

As a side note, my daughter takes medications for a different purpose, The side effects of the medication note that thirst can occur,.

I had been to see my Dentist for my semi-annual visit when the hygienist offered me a sample of Biotene. I took it home and had my daughter try it. It helped her considerably and she now takes it regularly and has found relief. I suggest that you try a bottle, it may help.

[Cheryl C]

Thank you all for your thoughtful and informative replies. I love this forum!

[milliken2]

Cheryl;
Are you taking any anti-histamines - either prescribed or over the counter? They tend to dry you out, especially at night. Also - if you are a mouth breather, it will be even more pronounced since you are drying out the mucous membranes as well as the anti-histamines drying out your system as well. Just a thought.

Beth