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#1
Mon Aug 13, 2012, 01:31 PM
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MDS to AML what now???????
 Hey everyone:Well just got back from Moffitt. The MDS is now AML!!!!!!!!! Don't know what to do. My doc is out of town this week. They are going to be starting induction sometime in the next 2wks. It's not the normal induction chemo its something new. I know it's two weeks in the hospital, but don't know what kind or how many rounds. We are playing the waiting game. Oh Fun............... Hope all is well. Anneg God Bless 
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#2
Mon Aug 13, 2012, 05:07 PM
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Anneg,
I know these aren't the words you wanted to hear. But hang in there. You are in our thoughts and prayers.
__________________
Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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#3
Mon Aug 13, 2012, 05:26 PM
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Hi Anne,
I agree with Linda, you are in our thoughts. So sad that you are going through this, after everything you have been through. Remember with "hope" anything is possible! A big (HUG) is being sent your way, Anne!
__________________
Dean,age 76, dx MDS, RAEB-2, 17% blasts, June 2012 - May 2013 - Dacogen with Neupogen and transfusions as needed. End of May 2013 Dacogen stopped working. BMB July 2013 shows RAEB-2 and severe Myelofibrosis. Passed away September 30, 2013
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#5
Mon Aug 13, 2012, 07:15 PM
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MDS to AML
Thanks everyone the are very much appreciated. My prayers and well wishes are sent your way.
Anneg God Bless
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#6
Tue Aug 14, 2012, 04:07 AM
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MDS
Hi Anne,
As you know the difference between MDS and AML is the % of blast cells. If they are 20% or more we have AML. There are members of this forum who has been dx with AML and treated. Then the blast cells decrease and they have MDS - Kirby Stone is one of these patients. Look at his posts and you can see that he has managed many years with best possible treatment. Hope the new drug or drugs will be effective! Kind regards Birgitta-A
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#7
Sat Sep 1, 2012, 10:50 PM
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prayers
I remember a year ago when we went to Moffit and Rick had a GI bleed before we got to eval. He spent 4 days in the local hospital, Hgb 4.0. Then after he got the green light he was diagnosed with fungal peumonia, three days before transplant. Moffott was great and six weeks later he had his transplant.
All this to say things happen for a reason. Moffitt is so thorough. Our physicians at home had not recognized any of these issues. Someplace else might have taken you to transplant and it would have failed. After induction and things get back under control you will be a canidate again. Keep your faith, stay strong and God will do the rest. Continue to be proactive. Godspeed.
__________________
Kris, wife of Rick. DX; MDS/ Ringed Siderblast 5/2006. Supportive care, then Vidaza x 25 mo. HSCT 11//1/11 doing GREAT! 
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