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MDS Myelodysplastic syndromes

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  #1  
Old Sun Jan 31, 2016, 02:37 PM
Data Data is offline
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Smile News from Tracey
For those of you who are following Tracey's progress, she is still in the hospital. She asked me to post this message:

_____________________________________________________________
I got good news today - the bmb showed the leukemia was completely gone from the marrow!
_____________________________________________________________

Hope everyone is doing well.


Data
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Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
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  #2  
Old Sun Jan 31, 2016, 05:11 PM
bebop bebop is offline
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that is awesome news!
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  #3  
Old Sun Jan 31, 2016, 09:09 PM
Cheryl C Cheryl C is offline
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Yay! Wonderful news, Tracey.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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  #4  
Old Wed Feb 3, 2016, 07:33 PM
Faye R Faye R is offline
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Talking
That's wonderful news gives us all hope never say never
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  #5  
Old Tue Feb 16, 2016, 04:16 PM
maggiemag maggiemag is offline
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any recent news?
Hi everyone. Haven't seen anything posted recently about Tracey. I hope it's b/c all is going very smoothly! I do worry when we don't hear.

Hope all of you get only good news today.
Mags
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Margaret, age 68, dx MDS 5 q- 5/09- now RCMD; also MGUS. TP53 and TET2 mutations
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  #6  
Old Tue Feb 16, 2016, 06:51 PM
Data Data is offline
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Tracey
Quote:
Originally Posted by maggiemag View Post
Hi everyone. Haven't seen anything posted recently about Tracey. I hope it's b/c all is going very smoothly! I do worry when we don't hear.

Hope all of you get only good news today.
Mags
I just e-mailed her and asked how she was doing. I haven't heard back yet but I will post her status if she wants she wants me to.

Data
__________________
Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
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  #7  
Old Tue Feb 16, 2016, 07:40 PM
PaulS PaulS is offline
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That's great - thanks for the report.
p
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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  #8  
Old Tue Feb 23, 2016, 06:35 PM
orioles70 orioles70 is offline
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very glad to hear the chemo did it's job
Tracey,

very glad that you got some good news after chemo

my father has recently been diagnosed with MDS and it's already progressed to AML with 40% blasts.
he is scheduled to start chemo (Dacogen) next week

I'm praying that he also has some success at knocking out the blasts.

I wish you well.

Matt
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  #9  
Old Thu Feb 25, 2016, 10:56 PM
Pearl Pearl is offline
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Originally Posted by maggiemag View Post
Mags
maggiemag this note is for you. Pardon me but I could not find a way to write you directly and I can't seem to find a way to make my contact information available. I was just diagnosed with exactly what you were originally diagnosed with, and we are about the same age. The doctor I will see every three months has focused on MDS for years and told me watch and wait, just like you. The only blood issue now is my hemoglobin, which is still over 11. I presume that level can change at any time. I need a little help putting all this in perspective.
Last edited by Pearl : Thu Feb 25, 2016 at 11:10 PM.
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