Home         Forums  

Go Back   Marrowforums > Treatments > Transplants
Register FAQ Search Today's Posts Mark Forums Read

Transplants Bone marrow and stem cell transplantation

Reply
 
Thread Tools Search this Thread
  #1  
Old Wed May 29, 2019, 07:56 PM
Rarity Rarity is offline
Member
 
Join Date: Sep 2017
Location: USA
Posts: 60
1 year post transplant and 1 year old!

Wanted to post an update:
It's been almost 2 years since my husbands MDS diagnosis and 1 year post transplant and is 1 year old! Grateful every day! So grateful for the donor for giving him a longer shot at life and letting us continue to share our lives together. Praying that this trend will continue for him.

As those who have gone through transplant, you all know what the journey is all about even though everyone has different experiences. We are finally beginning to breathe easier although still cautious.

I am so very proud of him and what he went through. His bravery and a real trooper. He did very well post transplant. No GVHD, no infection, just some minor issues that were rectified with changing med dosages. And his hair hasn't grown back. But he is ok with that! I said to him, it's trendy and I am used to it. People he hasn't seen in a while do not recognize him. A small price compared to the alternative. He is back to work, although it was tough in the beginning and now he said it's like he never left. He's gotten vaccinations and is now getting the boosters.

I wish everyone going to transplant a successful one. Don't give up hope you can do it!

Rarity
Reply With Quote
  #2  
Old Wed May 29, 2019, 08:23 PM
shadowii shadowii is offline
Member
 
Join Date: Apr 2019
Posts: 36
Smile

im glad to here this
Reply With Quote
  #3  
Old Wed May 29, 2019, 08:43 PM
DanL DanL is offline
Member
 
Join Date: Dec 2010
Location: Denver, CO
Posts: 579
Wow. that is an amazing and inspirational recovery. Best of health moving forward for your husband.
__________________
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
Reply With Quote
  #4  
Old Fri May 31, 2019, 07:45 AM
Rarity Rarity is offline
Member
 
Join Date: Sep 2017
Location: USA
Posts: 60
Thank you Shadowii! Well wishes to you!

Dan - A big thank you to you for all your helpful answers when we started this journey. It is very much appreciated! Wish you well and hope you are getting through your recent bump.

Rarity
Reply With Quote
  #5  
Old Fri May 31, 2019, 06:32 PM
Meri T. Meri T. is offline
Member
 
Join Date: Aug 2016
Location: Tokyo, Japan
Posts: 145
Rarity,

Such wonderful news ! No GVHD and vaccinations already ! And back to work ! I am proud of him And proud of you too !!!

Take care and God bless.
Do remember to update us.

Meri
__________________
Female 54, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in June 2017. Some GVHD skin.
Reply With Quote
  #6  
Old Sat Jun 1, 2019, 08:15 PM
Rarity Rarity is offline
Member
 
Join Date: Sep 2017
Location: USA
Posts: 60
Thank you so much for your kind words Meri Proud of you too!

God Bless you as well!
Rarity
Reply With Quote
  #7  
Old Mon Jun 3, 2019, 10:52 PM
Cheryl C Cheryl C is offline
Member
 
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 833
Wonderful news, Rarity. Congratulations to you both!
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote
  #8  
Old Tue Nov 5, 2019, 10:43 PM
quantpsyc quantpsyc is offline
Member
 
Join Date: May 2017
Location: Leland, NC
Posts: 16
Great news Rarity. Ed is almost 6 months out and struggling with unexpained thrombocytopenia but still thankful for each day! He is my hero!
Keep up the good fight! Kathleen
__________________
Kathleen, adoring wife of Ed 67 yo, Dx April 2017 MDS RAEB2, no chromosomal mutations, as of August 2017 only supplement therapy, living and loving each day.
October 2018 started Decitabine, "exceptional response", MUD HSCT May 7, 2019.
Reply With Quote
  #9  
Old Fri Nov 8, 2019, 02:17 PM
Rarity Rarity is offline
Member
 
Join Date: Sep 2017
Location: USA
Posts: 60
Hello Quantpsyc,

Yes, they are all hero's who have to endure this journey! Never give up hope! I hope your husband continues to move forward even through the bumps along the way.

My husband continues to do quite well! He is 18 months post transplant. He truly is a fighter and I am so very proud of him for that! I sometimes almost feel guilty for his almost non eventful recovery that I don't post. I do check in to see how everyone is doing. Take care!

Rarity
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Male fertility post transplant sstewart09 Transplants 1 Tue May 5, 2015 03:22 PM
Post Transplant Meals Kari M Transplants 5 Fri Mar 8, 2013 06:42 PM
Post Transplant donna j. Transplants 3 Tue May 15, 2012 11:32 PM
1 year birthday of a second stem cell transplant. pbaxter Transplants 2 Tue Nov 1, 2011 03:36 PM
NMDP Provides Transplant Information Marrowforums Transplants 1 Tue May 8, 2007 05:00 AM


All times are GMT -4. The time now is 01:59 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright 2006-2019 Marrowforums.org