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Drugs and Drug Treatments ATG, Cyclosporine, Revlimid, Vidaza, Dacogen, ...

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Old Mon Sep 17, 2012, 11:10 PM
donna j. donna j. is offline
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Treatment other than steroid

GVHD-treatments other than steroids

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OK so the steroid Budesonide gave me relief from GI GVHD, however the side effects are intolerable.
Is anyone aware of any other treatment, or meds for mild-mid GI issues caused by GVHD so we think Closing of throat and esophogus and chronic queasiness?
(I am currently on Cyclosporine and Virconazole and just finished Cipro; all who multiply the side effects of the steroid on the body)

thanks

Donna
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.

Last edited by Marrowforums : Sat Sep 22, 2012 at 07:00 PM. Reason: fixed signature
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Old Mon Sep 17, 2012, 11:50 PM
mausmish mausmish is offline
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Donna,

I didn't have closing of throat or esophagus but I did have chronic queasiness. My GI doctor prescribed Carafate. What helped me most with the nausea was Ativan (the smallest possible dose...0.5 mg I think) twice a day, as soon as I awakened and one before bed. Over time, I was able to reduce it to once at night, then every few days as needed, and finally none at all. The doctor told me to eat many small meals and that did help. My nausea was always worst on an empty stomach. I participated in a GVHD study at NIH and they thought I had GVHD but weren't able to confirm definitively. I did not take any steroids or immunosuppressants.

Hope this helps.

Karen
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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Old Tue Sep 18, 2012, 01:31 AM
donna j. donna j. is offline
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Thanks Karen, will talk with Dr. tomorrow. Hope you are doing well with all on your plate.

I know my husband would prefer me on the Ativan versus the steroid. I've been flying off the handle!!!

Donna
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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