Home         Forums  

Go Back   Marrowforums > Treatments > Drugs and Drug Treatments
Register FAQ Search Today's Posts Mark Forums Read

Drugs and Drug Treatments ATG, Cyclosporine, Revlimid, Vidaza, Dacogen, ...

Reply
 
Thread Tools Search this Thread
  #1  
Old Wed Dec 27, 2006, 09:11 PM
Zita Desenberg Zita Desenberg is offline
Member
 
Join Date: Aug 2006
Location: florida
Posts: 19
Results and side effects from Vidaza

About a year ago I posted to the AA-MDS-Talk listserve a question about Vidaza. I was interested in the side effects and results people have experienced as the drug has been suggested for me. I have not used Vidaza yet, but I am still interested in hearing about other's reactions to the drug.

I was diagnosed with MDS 10 years ago and have experienced very few symptoms associated with the disease. My platelet counts are the lowest- currently measuring from 26,000 to 50,000 - depending on which lab I am using. I fortunately have had no bruising or bleeding - on occasion a few sores on my gums or throat.

Thanks for responding.
Reply With Quote
  #2  
Old Fri Dec 29, 2006, 08:53 AM
Monica Meyer Monica Meyer is offline
Member
 
Join Date: Aug 2006
Location: Manhattan, NY
Posts: 10
Quote:
Originally Posted by Zita Desenberg View Post
About a year ago I posted to the AA-MDS-Talk listserve a question about Vidaza. I was interested in the side effects and results people have experienced as the drug has been suggested for me. I have not used Vidaza yet, but I am still interested in hearing about other's reactions to the drug.

I was diagnosed with MDS 10 years ago and have experienced very few symptoms associated with the disease. My platelet counts are the lowest- currently measuring from 26,000 to 50,000 - depending on which lab I am using. I fortunately have had no bruising or bleeding - on occasion a few sores on my gums or throat.

Thanks for responding.
Dear Zita,
The only side effects I had from Vidaza was constipation so I took Senna-C laxative and that helped plus liquids. I did a round robin and had the injections first on each arm, then thighs and then my stomach. Did get huge black and blue marks and now have tan circles. Had five sessions from March to July. Did not work for me and took my counts down. Now have tx's about once a month. WBC and platelets are slowing going up.

Good luck, hope it works for you.
Monica Meyer
dx. 8/03 MDS-RARS
Reply With Quote
  #3  
Old Mon Nov 16, 2009, 05:41 PM
roger roger is offline
Member
 
Join Date: Oct 2009
Location: Orange County, CA
Posts: 38
I just joined and am finishing up on my first cycle of Vidaza. Side effets have been minimal except for the expected constipation.

As I read the boards I notice all replies are from people that have recently been dx'd andtreated but few from those who were treated with Vidaza years ago.

Anyone care to comment of the success rate and how life was during say the first 4 years on Vidaza?

Thanks for whatefver you can shae with me

God bless
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Vidaza Survey - How Long? Sue&Dave MDS 31 Sat Aug 29, 2020 06:48 PM
Vidaza: How Long Can You Live? MDS Diagnosis sobrien MDS 2 Wed Aug 14, 2013 03:44 PM
mds and vidaza new treatment crpa MDS 31 Sun Apr 4, 2010 04:34 PM


All times are GMT -4. The time now is 05:45 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org