Home         Forums  

Go Back   Marrowforums > Treatments > Transplants
Register FAQ Search Today's Posts Mark Forums Read

Transplants Bone marrow and stem cell transplantation

Reply
 
Thread Tools Search this Thread
  #1  
Old Tue Jan 12, 2016, 12:45 PM
GoodDay5150 GoodDay5150 is offline
Member
 
Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Has Anyone Met Their Donor?

So has anyone here met their unrelated donor? One person I read about was amazed at how similar he was to his donor. Was your experience the same? I have not met my donor, but I of course would very much like to meet him. I was only given basic information, male, 27 yrs old at the time, and from the U.S. I have spoken to a person who was donating for a stranger and thanked him for going out of his way to help someone that he had never met.

Mario
__________________
MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
Reply With Quote
  #2  
Old Tue Jan 12, 2016, 03:01 PM
bailie bailie is offline
Member
 
Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
I have not met my donor (20 year-old male from Germany). We have to wait two years before making direct contact. I did send a "non-personal" email to him through "Be the Match", but did not hear back.
__________________
age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
Reply With Quote
  #3  
Old Tue Jan 12, 2016, 09:32 PM
sstewart09 sstewart09 is offline
Member
 
Join Date: Feb 2013
Posts: 65
We've been in contact with my husband's donor. She's a young lady from Poland. We haven't met in person, but we have skyped on multiple occasions. It's an amazing feeling to be able to thank the person who saved your husband's life. From our conversations, it's interesting to pick out some of their similarities. Whether by coincidence or DNA, it's pretty cool!
__________________
Samantha, wife of Joe age 34; diagnosed vsaa 2012; MUD BMT February 2013
Reply With Quote
  #4  
Old Wed Jan 20, 2016, 12:26 AM
Ruth Cuadra Ruth Cuadra is offline
Administrator
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 616
My unrelated donor transplant was in 1998. I met my donor in 2000. You can read the details on my Profile.

Although I don't know her very well, I don't think we have very much in common except for the crucial 12 HLA antigens that we share. I'm often asked if I "inherited" allergies or food likes/disklikes from my donor, but I have not. On the other hand, we both have an intense dislike of peas so maybe we overlap at more than those 12 antigens!

Regards,
Ruth
__________________
Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
Reply With Quote
  #5  
Old Wed Jan 20, 2016, 11:06 AM
bailie bailie is offline
Member
 
Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
Ruth, that is interesting. I haven't found much information about what traits, if any, are passed from donor to recipient. Has anyone run across any studies?
__________________
age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
Reply With Quote
  #6  
Old Wed Jan 20, 2016, 01:50 PM
GoodDay5150 GoodDay5150 is offline
Member
 
Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Thank you for all of the replies and stories. I have also heard about inheriting allergies/ and likes and or dislikes from a donor, but I don't know if any have been proven scientifically. In my own case, I think that my hair has changed color slightly and I have some minor sinus issues, and or occasional allergies. It's an odd feeling to have someone else's cells as a part of you. I don't think that it's psychological.

Mario
__________________
MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
Reply With Quote
  #7  
Old Wed Jan 20, 2016, 04:34 PM
evansmom evansmom is offline
Member
 
Join Date: Nov 2007
Location: Ontario, Canada
Posts: 203
We have not only met my son's unrelated donor Bryan but now consider him part of our family. He lives in Nashville and we're up here in Ontario but we get together every summer. He's been up here a few times and we've been down there a few times. He fits our family perfectly as he shares very similar views, emotions and humour.
__________________
Nicole, mom to Evan (20); diagnosed SAA November 2007, hATG mid-November 2007, no response after 6 months, unrelated 9/10 BMT June 2008, no GVH, health completely restored thanks to our beloved donor Bryan from Tennessee.

www.caringbridge.org/visit/evanmacneil
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Has Anyone Met Their Donor? GoodDay5150 Transplants 2 Thu Oct 5, 2017 09:02 AM
I met my donor! mausmish Transplants 13 Thu May 31, 2012 05:32 PM
First National Blood Donor Week & World Blood Donor Day Doug Mylie Canada 1 Thu Jun 12, 2008 05:56 PM


All times are GMT -4. The time now is 05:01 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org