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Old Sun Feb 7, 2016, 10:34 PM
Marrowforums Marrowforums is offline
Join Date: Jul 2006
Posts: 821
One-day Patient Conference in Raleigh, North Carolina, July 16, 2016

A free one-day patient conference will be held in Raleigh, NC on Saturday, July 16, 2016. The conference, hosted by the Aplastic Anemia & MDS International Foundation (AA&MDSIF), is one of seven one-day patient conferences in 2016.

The conference is for AA, MDS, and PNH patients and their families, as well as medical professionals who care for these patients.

The conference will include parallel (simultaneous) sessions on AA, MDS, and PNH, sessions on transplants, clinical trials, health insurance, and decision-making, as well as professionally-facilitated support sessions with your peers.

Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight. There will a Friday Night Social the evening before the conference.

Conference Program

Come hear the latest information about diagnosis, treatment, and medical research from leading experts, including these physicians:
  • Dr. Carlos De Castro, Duke University
  • Dr. Amy DeZern, Johns Hopkins University
  • Dr. Vu Duong, University of Maryland
  • Dr. Thomas Shea, University of North Carolina Chapel Hill
Patients and family members will also be able to
  • meet medical experts face-to-face
  • hear about the latest treatments and medical research
  • learn skills for managing life with a bone marrow failure disease
  • have your questions answered
  • learn how to be your own advocate for the best care
  • get to know other patients and family members like yourselves
  • attend professionally-facilitated support sessions
A special lunch program will let conference attendees meet and talk, with an emphasis on ways to stand up for your health.

AA&MDSIF Patient and Family Conference: Living with Aplastic Anemia, MDS, or PNH

Saturday, July 16, 2016, 8:30am to 4:30pm
Check-in begins at 7:30am.
Sheraton Imperial Hotel & Convention Center (Google map)
4700 Emperor Blvd, I-40 at exit 282 (Page Road), Durham, NC 27703
919-941-5050 (main)

Hotel reservations:
Discounted hotel rates are available through Tuesday June 14, 2016.
Phone: 800-325-3535 or 919-941-5050 (mention "AA&MDSIF Patient Family Conference")
Online Hotel Reservations
Hotel parking is free. A free airport shuttle is available.
See other hotel information on the AA&MDSIF event page.
Conference registration:
Use the online Conference Registration Form to register for the conference.
No registration deadline has been set.

For more information see the AA&MDSIF event page.

If you plan to attend this conference, post in this thread to let other attendees know to look for you!

After the conference, let us know what you thought of the event.
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Old Wed Jun 1, 2016, 05:05 PM
Marrowforums Marrowforums is offline
Join Date: Jul 2006
Posts: 821
There is still room for additional patients and family members at the conference in Raleigh, North Carolina on Saturday July 16, 2016.

Patient and Family Conferences offer a unique chance to hear the latest information on disease understanding, treatment, and research, from leading experts, to have your questions answered, and to meet other patients who know what you are going through.

To register for the conference, use the links in the post above.
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Old Tue Jun 21, 2016, 11:30 AM
Marrowforums Marrowforums is offline
Join Date: Jul 2006
Posts: 821
Register now

To attend the Raleigh conference you must register before the end of June, which is coming up soon. Space is available if you register now.

Click here to register so you don't miss the deadline.

The conference will be held Saturday July 16, 2016.
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