Home         Forums  

Go Back   Marrowforums > Practical Issues > Insurance, Finances, Disability, Veterans Benefits
Register FAQ Search Today's Posts Mark Forums Read

Insurance, Finances, Disability, Veterans Benefits Your finances, insurance, job issues, and veterans benefits

Reply
 
Thread Tools Search this Thread
  #1  
Old Tue Aug 18, 2009, 08:29 PM
Hispit Hispit is offline
Member
 
Join Date: Aug 2009
Posts: 8
Lightbulb Work and AA

I'm interested in finding out about those of you who work f/t or p/t w/AA (or any other disease). Did you find that you had to quit? Go p/t? Disability? I am asking because I am facing having to quit my job for a lack of enough stamina to continue (I drive a school bus...split shift...which is SO hard to last an entire day, which in actuality starts at 4:30 a.m. and ends at 4 p.m...... I'm so pooped! But there are no alternatives in my dept.)

Thanks so much.
Reply With Quote
  #2  
Old Tue Aug 18, 2009, 10:24 PM
JEZ JEZ is offline
Member
 
Join Date: Apr 2009
Location: Birmingham, AL
Posts: 68
When first diagnosed I continued to work full time one month, then took short term disability from my job and recieved horse ATG/ cyclosprine treatment. I could not work at all when taking high doses of prednisone. I went on long term disability with my work 3 mos. later and the policy had a return to work incentive so I was able to go part time and still receive some disability benefits from that policy. I had to work enough hours to keep my health insurance but I felt sooooo sick.... it was very, very hard for me. I was so fatigued I had to rest 4 times just to walk a slight incline up one block to the stop sign on my street. By 9 months after the treatment and as my bone marrow improved, I went back full time and went off of disability. It was a big decision but I am glad I did it as I got stronger from working. It has been just under 2 years since I went back full time. I wish I could work 5-6 hours per day instead of 9 but financially it is not possible. But I am doing pretty good. I do get fatigued at the end of a busy day. I do not need transfusions at all now. If I did I think it would be hard to work this much.
__________________
JEZ, 50s, diagnosed AA Dec 2006, ATG one time, serum sickness resolved / took cyclosporine (Neoral) with delayed response but now with good labs/ recent kidney toxicity, so off of cyclosporine now and trying generic Imuran
Reply With Quote
  #3  
Old Wed Aug 19, 2009, 05:16 PM
Marlene Marlene is offline
Member
 
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Before treatment, John kept working full time. Then he took short term disability for the first six month to undergo treatment. He then went on long term disability for six months and then went back part-time for the second year. He then was able to go back full time. He was transfusion dependent for two years. It was difficult but I drove him everywhere during this time.
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
Reply With Quote
  #4  
Old Mon May 10, 2010, 02:16 AM
Robi1Knobi Robi1Knobi is offline
Member
 
Join Date: Mar 2007
Location: Austin, Texas USA
Posts: 98
work

Hi Hispit,

I have moderate AA now, and have had 2 transfusions due to shortness of breath. I am at work right now having shortness of breath (even after my 2nd transfusion Tuesday). I have been debating this same thing you are talking about, and actually posted a thread recently. I guess it all boils down to how much you can handle, and still take care of yourself. I am having to return to full time work due to finances, but if I can't handle it, I will go back to part time, and if I can't handle that, then guess it will be disability for me. I also work 12 hour shifts (7pm-7am), and that is really rough on our bodies...I hope you find a happy medium. Keep me updated, Linda
__________________
Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Slow-moving AA / Pancytopenia, or What? David M Tell Your Story 92 Thu Dec 14, 2023 07:22 PM
A few questions regarding the nature of AA Logain AA 3 Mon May 16, 2016 11:31 AM
AA again after 30 years! Sara J Tell Your Story 10 Tue Apr 17, 2012 11:03 AM
Newbie Story / "not typical" AA presentation Deanna16 Tell Your Story 4 Fri Feb 12, 2010 09:18 AM
AA - Expected Outcomes? Catherine2008 AA 4 Tue Oct 14, 2008 10:50 PM


All times are GMT -4. The time now is 01:11 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org