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  #1  
Old Fri Oct 12, 2012, 08:24 PM
cdseibold cdseibold is offline
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Anyone going to Chicago AA&MDS conference?

Anyone going to the Oct 20th conference in Chicago? Got my reservations.
Looking forward to learning more about AA and MDS.
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Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
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Old Sun Oct 14, 2012, 10:53 AM
kris kris is offline
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This is a very good support opportunity. Rick and I attended the one in Atlanta. it give you hope. Go and get all the information you can.
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Kris, wife of Rick. DX; MDS/ Ringed Siderblast 5/2006. Supportive care, then Vidaza x 25 mo. HSCT 11//1/11 doing GREAT!
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Old Fri Oct 19, 2012, 12:19 PM
adjbrown68 adjbrown68 is offline
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This is my first post to the group. I have been so overwhelmed with everything surrounding my diagnosis, that I've just been a lurker. My husband and I are attending the conference. We'll be leaving in a few hours. Maybe we'll run in to you there. Best, Angela (44, Diagnosed with MDS in October 2010

Last edited by adjbrown68 : Fri Oct 19, 2012 at 12:20 PM. Reason: left off name
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Old Sun Oct 28, 2012, 04:16 PM
cdseibold cdseibold is offline
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Conference Wow

The conference was outstanding. I would recommend it to everyone. I learned so much. I met so many great people. On my return home I felt so much better about myself and my MDS challenge.

In summary, if you can make it to a conference, you should go.
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Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
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  #5  
Old Sun Oct 28, 2012, 04:18 PM
cdseibold cdseibold is offline
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Smile Conference Contacts

Meeting others was probably the best part of the conference.
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Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
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  #6  
Old Fri Nov 16, 2012, 05:12 AM
Kabir A Kabir A is offline
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Quote:
Originally Posted by cdseibold View Post
The conference was outstanding. I would recommend it to everyone. I learned so much. I met so many great people. On my return home I felt so much better about myself and my MDS challenge.

In summary, if you can make it to a conference, you should go.
I am disappointed I missed this conference, as I have been hearing really good things about it. I just was not able to get it together enough to book Chicago Hotels at such late notice. It sounds like a really positive experience. Are there any other good conferences that I can attend? Any information would be greatly appreciated. Thanks!

Last edited by Kabir A : Mon Nov 26, 2012 at 11:16 AM.
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  #7  
Old Fri Nov 16, 2012, 12:28 PM
Neil Cuadra Neil Cuadra is offline
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Originally Posted by Kabir A View Post
I am disappointed I missed this conference, as I have been hearing really good things about it. It sounds like a really positive experience. Are there any other good conferences that I can attend? Any information would be greatly appreciated. Thanks!
The AA&MDSIF and the MDS Foundation have both announced the cities but not the dates for their 2013 patient and family conferences.

The AA&MDSIF conferences will be in Phoenix, Cleveland, Houston, Boston, Tampa, and San Francisco. Here is the list.

The MDS Foundation conferences in the U.S. will be in Gainesville, Chicago, Philadelphia, Atlanta, Buffalo, Ann Arbor, Portland, San Diego, Indianapolis, and Long Island New York. Here is the list, which also includes a conference in Berlin on May 11, 2013.
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