Home         Forums  

Go Back   Marrowforums > Community > Tell Your Story
Register FAQ Search Today's Posts Mark Forums Read

Tell Your Story Say hello or share your experiences

Reply
 
Thread Tools Search this Thread
  #1  
Old Sat Oct 3, 2009, 07:01 AM
ann ann is offline
Member
 
Join Date: Aug 2009
Location: Burleson, TX
Posts: 77
Talking New support friends

I have been given the email addresses of two women who have gone through what I am going throuh now. It has been helpful to find out there is someone who understand what my feelings are at this time. My husband is fighting MDS and his congestive heart disease but we know it is a matter of time before he will leave me. We are just grateful for every day we have and are making the best of a bad situation.
Good to have someone who knows how I feel withwhom I can communicate.
Reply With Quote
  #2  
Old Sat Oct 3, 2009, 10:31 AM
Dick S Dick S is offline
Member
 
Join Date: Jan 2008
Location: Florida
Posts: 189
Communications is one of the best medications.
__________________
Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
Reply With Quote
  #3  
Old Sat Oct 3, 2009, 11:34 AM
Vera W Vera W is offline
Member
 
Join Date: Jan 2009
Location: Colfax Ca
Posts: 152
Support

These things are never easy and it is hard to know what to say but fill yourself up with love for your husband so that it is overflowing and it will help carry you through, God Bless..We are here for you!
__________________
Vera, 56 yo female Dx RAEB II 10-08, 11-12% blasts. Normal chromosomes. Started Vidaza 10-08. . Improved Dx 3-09 MDS RA 2% blasts 8 cycles Vidaza! SCT transplant 7-1-09 at UCSF. Normal bone marrow and MDS free as of 10-09
________________________________________________
Reply With Quote
  #4  
Old Tue Oct 6, 2009, 05:13 AM
ann ann is offline
Member
 
Join Date: Aug 2009
Location: Burleson, TX
Posts: 77
Good report

Got some encourging news yesterday. My husband's counts were up and his ocologist was so pleased. Did not have to have a Procrit shot. Go back next week for five days of Vidaza. He has felt so good this past week. We are still sticking close ot home with the flu all around. Did get a flu shot last week and it didn't hurt either one of us. We get them every year so did not expect any adverse effects. Hoping the swine flu shots will come along soon. Lots of kids in our area are out of school sick. The oncologist said to keep away from those little germ carriers!!
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
2017 Patient Support Meetings AAMAC Canada 0 Tue Jul 25, 2017 04:46 PM
San Francisco Bay Area California MDS Support Group Marrowforums Support Groups and Communities of Hope 10 Mon Feb 8, 2016 12:11 AM
Hershey Pennsylvania Community of Hope Support Group Marrowforums Support Groups and Communities of Hope 0 Sun Feb 8, 2015 01:17 PM
New website for the PNH Research and Support Foundation Marrowforums News and Events 0 Thu Nov 20, 2014 01:30 PM
New Forum Section: Support Groups and Communities of Hope Marrowforums Site Announcements 1 Mon Feb 4, 2013 02:30 AM


All times are GMT -4. The time now is 10:01 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org